I thought I'd give a brief update and ask about the new dmd
I am looking to change back to my original neuro who I should never have left and my gp has contacted him so hopefully things will work out as I should never have changed over something so trivial as a bedside manner,They had just diagnosed me with lupus also at that time as well as MS so fair to say my head wasn't in the right place,Anyway after being undiagnosed with lupus and diagnosed with REM and still having the diagnose of MS,I actually quite liked the man and do trust him the most out of all of them,I'm hoping he will take me back.😄 Anyway after stopping tecfidera myself the ms team have agreed to change,Its a shame I have to completely stop something for them to listen to me but I'm not very assertive as I once was but least they are listening now,Anyway the point of this post is I was wondering of anyone is on Zeposia (ozanimod) ?? I've only just heard of this one and have been out of the loop for sometime and it looks quite new and just wondering peoples views on it and experience x
@Shonacampbell I was on the clinical trial for ozanimod. It's a step up from Gilenya (fingolimod) but hasn't been approved in England & Wales, only in Scotland. There were issues with my liver, nothing major but I'm now on Gilenya and doing fine. I haven't had any relapses on either the two drugs, and I'm managing my symptoms. If you want more information, check out the MS charity websites, which list all the drugs available for MS.
@AndreaG Hello I have looked it up on the ms trust website and doesn't say much really,Just wanted to hear from people who have or are on it. I think it's probably the one I'd go for as it is the most efficient x