@Shelly212 

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Shelly212

Csf Leak

Hiiiii 😩 new to this so please bare with me. I’ve read all your stories and they’re so similar to mine. I had a cfs leak after my epidural went wrong having my beautiful baby girl in April this year. I had a blood patch straight after, which stopped all head aches & stiffness of my neck went. But since I’ve been experiencing pins & needles/ weakness off my left side. I’ve to had MRI scans both with contrast, my neurologist has said there’s no Typical MS features. He said there has been a wind up in my body because of the leak I had. But these symptoms seem to be still persisting and bas been nearly 3 months on & off. I have had a nerve conduction test & have had some blood tests. Just waiting for results & in the meantime going out of my mind. My family and partner are sick of hearing it, and just keep telling me it’s all because of the leak and to listen to the experts. I Just feel so alone & am using google for answers which is scaring the crap out of me even more. Just want to be with my baby but all I can think about is this horrid disease. Has anyone had a leak and then found out they had MS. ? Would really appreciate your advise X
@Reanrafiei

I had a csf leak after being admitted to the hospital and finding out I have MS. For me the effects of the leak were worse than my ms symptoms. Once the blood patch resolved, I’m almost back to normal . Look up research published by Dr schievenk at cedars Sinai medical Center in Los Angeles. I work there and was treated by him. His publications will explain some other non traditional symptoms of Csf leaks

@Reanrafiei

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