I have woken 2013 blind and shortly after maybe a couple of years my so-called MS team advised me that I am SPMS fast forward to today or present day I had to have an MRI because my hand control is awful the spasms in my legs are like somebody's turned the jukebox up really loud and the legs won't stop dancing LOL. The MRI results come back showing two new areas of inflammation that could explain why I am losing my eyesight and one my balance is awful and they cannot understand it because I am as SPMS supposedly in which case I shall have no areas on the brain of inflammation. They have sent it away for a expert to look at and meanwhile I'm just hanging on, they have put me on a course of steroids that I pick up tomorrow and apart from that I am on n medication. I was on daily injections that they then took me off because they deemed I had made the change to SPMS but they cannot understand why I have lost the use of my legs and how I am fighting to control my arms and hands I have had numbness since the beginning of the pandemic in both arms and both legs and even my face and tongue which has made my food taste bloody awful. So my appetite took a dive and I lost two stone. Don't get me wrong to lose two stone when you are 16 stone was a great achievement but not perhaps in the correct way, so they are now not sure if I am SPMS or not and maybe I am still RRMS, which is mind blowing as anyone else been in this position I am UK-based regards