@RoxanaM 

Last reply

RoxanaM

PLEASE HELP

HI everyone, its been a while scince my last post ..but I really need your advice. So I've been diagnosed in 2022 with RRMS and immediately I've been put on Tysabri. Unfortunately i tested positive for JC..and the latest tests showed the virus is highly active..so my consultant advised me to switch medication so I wouldn't risk PML .. I'm in the middle of the process of switching DMT's ...I'm due to start Kesimta on the 13th of December. The issue is that at the moment im not on any DMT...both me and my son contacted some type of virus from school .that turned into a severe chest infections . I wasn't affected like this ever..temperature over 39 degrees Celsius... I lost the ability to walk ...I've been carried to the bathroom either by my husband or mother in law...or i literally had to crawl...had no coordination whatsoever..couldn't eat by myself..had to be feed..and even like that i couldn't keep anything down. It was the most terrible experience I ever had...and it not over... Both, me and my son started antibiotics ...just I am still with fever 🤒..day 2 on antibiotics. Will this affect in any way starting Kesimpta? Will this be delayed .. I am booked for 13th...I will contact the Kesimpta nurse to let her know ...as she's in holiday🙄😮‍💨 and no other nurse was available to train me. I am scared as hell.. I'm terrified of the fist injections ..that ive been told they come with some not very nice side effects... just need someone to understand me. Has anyone got delayd starting Kesimpta due to strong antibiotics? What were your side effects? Hope everyone is doing better than i do .. Take care and thank you in advance.
@Runningonempty

Hey @RoxanaM I can’t advise about the kisimpta as I have no experience of that dmt sorry but it sounds to me like ur having a relapse or very nasty symptom flare. Please don’t panic…..try to breathe….ur still not well and that is enough in itself and the stress won’t help either to to focus on feeling better & recovering from that. Remember with MS symptoms are not nessasarily permanent and u r still at the beginning of ur journey really remember u will cope, u will adapt ur stronger than u think and u have a great family support network by the sounds of it. Have u checked out the ms trust website? …….outlines dmt’s, side effects, pre & post treatment info etc So at least u can idea while u wait for contact from ur ms health team. Send u much support…..keep fighting and take care of urself!!!!! 👍💪💚

@Runningonempty

P.s u could also talk to ur GP who could also advise on some level or seek advice from ur team or ur behalf