@QuantumMechanic

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QuantumMechanic

Treatment Choice - Advice & slight rant.

Hi all, this is my first post. First let me say that my heart goes out to all of you, I was recently diagnosed with RRMS at the age of 39, just in time for my 40th birthday, and it's been extremely difficult for me to take. I began developing double vision back in June last year and it's progressed every day since then. I feel very lost, I know no one else nearby in my position and the NHS's apparent attitude toward the situation has been quite shocking to me, it almost seems lackadaisical. After a long wait I finally got to see a neurologist last week and after giving me a diagnosis he advised me to visit this website... https://www.mstrust.org.uk/understanding-ms/ms-symptoms-and-treatments/ms-decisions and to use the interactive tool to decide which drug to take. He recommended tecfidera, but after using the comparison tool the idea of possible brain infection does not appeal to me. Could I ask for some feedback from others with more knowledge on their experiences and advice on what they feel would be a good option. I feel very much in no mans land at the moment and extremely low, up till now I've always been the type to nip problems in the bud the instant they arise as I think this is of the utmost importance to stop them growing. Especially after reading this page... https://www.mstrust.org.uk/a-z/neda-no-evidence-disease-activity I am at a loss to understand why there aren't systems in place to accelerate treatments for this given the nature of it, the bureaucracy is quite literally dangerous. Again my heart goes out to everyone who finds themselves here. Also, I'm interested to know people's thoughts on the recent Panorama programme on MS, as it seems to have been the most positive thing I've seen so far. However, I was rather taken back when I asked the neurologist I saw about it and he said "That treatment's actually been around for a while, we tend not to advise it because some patients don't survive the chemo". Which isn't really the way the programme framed it. Now I don't know what to think. Frankly I'm amazed it's the 21st century and this still hasn't been solved yet, it's embarrassing.