Newly Diagnosed
This is my first time posting on here and I'm feeling quite depressed and scared about talking about it.
I am 25, have been diagnosed with MS as of the 25th of March. I know its been less than a month since my diagnosis but I still can't come to terms with it. I can hardly say out loud that I have MS. I feel like my whole life has changed.
I work in a school so had 2 weeks of for Easter break so had some time to process things. I have just taken this week off too because I can't bring myself to see people withput crying. I want to go to work so I can stay active but have no desire to move from my bed or the sofa.
Ive told my family, but my parents don't really understand what MS is. They seem to think I will get better / completely recover and won't listen when I tell them it won't be like that. I know they will need time to learn more but I just wish they would say they will support me instead of telling me things will get better, they will find a cure and 'keep you chin up'.
I like with my boyfriend of 10 years and he has always said he will stand by me no matter what. I can't help but feel like I have destroyed our future. I can't help now but picturing him happy and healthy with me, his forever disabled partner, becoming a leech on his side, sucking the joy out of everything because of how I will end up. I know I want to be with him for the rest of my life but feel so much guilt about how my health will impact our lives together.
I don't see myself having a happy future, I feel so depressed and useless and want to shut myself away from the world. I'm so scared of what life will be like now and don't know what to expect from the next few weeks. I should be hearing from the MS nurses from the neurology department so again it's just a waiting game for more information.
I'm meant to be starting on Kesimpta and have been given an information booklet on it bit by my neurologist. Other than that I just have to wait for a letter from the hospital for an appointment.
I don't know what I should be doing in this period of waiting to see an MS nurse.
Diagnosis can be a lot to deal with, especially if out of the blue. And it’s not unusual that not everyone will ‘get it’ Sounds like you’re blessed with your boyfriend sticking with you. And it’s hard not to second guess the future or imagine what might happen - I guess id encourage you (as much as possible) not to do that, to keep talking to your boyfriend (and maybe other friends around you) about how you’re processing it. It may be worth looking into calling an MS charity (eg MS Society or MS Trust in UK) who could be helpful in giving info or support you might need. And keep reaching out here - you’ve got a friendly bunch here - who do ‘get it’ 🤗
Hi I was just Diagnosed 2 months ago. I am on Kisimpt and are just moved to the monthly shots. I will have to wait and see how well it works. Ian