No support
So after nearly 7 years with this crappie I've finally realised there really is no support out there. I mean sure I've had Lemtrada but apart from that it feels like I've had no support from doctors, nurses etc.
Got denied pip after waiting over a year for it to go to tribunal because the woman who did my assessment all but lied.
I've contacted doctors and my ms team about my struggles with fatigue, walking and my mental health and again nothing. It's always the same thing, do blood tests and see how you feel in a few weeks. Contact them again oh there's nothing they can do as it's not a relapse.
Try to get something to help with fatigue and apparently no medication exists. Yeah right.
I'm just thankful I can vent my frustrations in this website and I know my family and friends will support me but I guess there really is no support out there for ms.
To be honest that's what I have found the NHS doctors neuros they're all a waste of time all they do is just pedal all the latest drugs for MS.. it seems that any caring has gone out the window we are just treated like sheep... Personally I have found I get no support from the people who are supposed to give me support.. so in the end I gave up and I went it alone no more having to put up with lying bullshitting doctors and neurosurgeons who are only there just to get paid and don't give a damn about what's wrong with you and don't listen in other words I'm just as pissed off with everything as you are and it's been getting steadily worse with the NHS over the past 20 plus years anyhow have a great day... I managed to research my condition and I use natural medication and remedies to keep my Ms under control
It’s the same in Ireland, My impression of the ordeal of getting diagnosed was it felt like they where working in tesco and I was a can on the shelf.