Approaching the subject of having ms
Hi all, I keep getting alot of people telling me I don't look. I just walk funny (I now limp a bit due to the ms). I told someone that I have ms and I got told by the person that it is all on my head, if I wasn't a big as I am i would be fine. How can anyone say this. It has frustrated me so much. Has one else experienced this from anyone at all xx
I’m sorry someone said that, they clearly have no idea or experience of MS. My reply to that is usually ‘yes you’re right, my immune system is whizzing around my brain killing bits and leaving dead bits in the way so my limp starts in my head’. And walk away (slowly clearly, I also limp to varying degrees on my left side). Sending hugs xx
I agree with the comment above! “If what you mean is that MS is an active brain disease, YES, THAT would be accurately in my head”. Some people are just prone to say the most ‘positive thing they can think of—-so I truly believe SOME are just being hopeful for you. But certainly others can’t see any overt visible symptoms, so they may have a hard time appreciating the FEELING/ PAIN/ LIFE DISRUPTION. I am sorry that someone gave you this type of feedback. Ask your doctor! This is not in your head! And you are recently diagnosed, so that is a really hard time with your friends/family giving you their initial comments.