Might have Clinically Isolated Syndrome
Hey 👋🏻
Hope we’re all doing well in isolation ☺️
Following on from my last post 2 months ago, I’ve received some letters telling me that my MRI was clear and that my MOG antibody test was negative - which is good because that means no new disease activity 😁
However, the MOG test was going to make the picture a little clearer if I had tested positive, but now I’m just as unsure as I was 10 months ago when my symptoms appeared for the first and only time...
I’m starting to think that - because I have only had one episode of symptoms and my MRIs don’t meet the McDonald Criteria - the Doctors might have gone 1 step too far and started to investigate me for MS when it actually looks like I have Clinically Isolated Syndrome.
Anyone got any similar experience or advice on what to do next?
All my symptoms lasted about 8 weeks and cleared up entirely after steroids. I have been absolutely fine since. I’ve searched the forum for more CIS stories but couldn’t find anything quite the same.
Thanks again folks, keep smiling ☺️
@keepsmyelin99 , check out this post :- https://shift.ms/topic/is-cis-a-type-of-ms especially the last update/link.
Thanks @stumbler ☺️