Is CIS a type of MS?
Hi,
I have not checked in for a few weeks but I am feeling frustrated with the NHS! I had blood taken in mid-September and have not received any results, my next appointment with the neurologist is late January. I did some reading yesterday as my husband has sprained his back so we are not earning money from going to market. I have a diagnosis of CIS and read that one of those international organisations recommended that CIS be treated as a type of MS.
So should I be pressing for treatment? I did have a positive response when I emailed the secretary of the neurologist and asked if I should have the flu jab, so I am protected from flu now!
Thanks,
Sarah
@thequietlady , a diagnosis of CIS is a bit of a cop-out. But, it reflects a single demyelinating event, which doesn't quite meet the "multiple" part of Multiple Sclerosis! You're right, some organisations do suggest treatment for CIS, to try and prevent progression to a diagnosis of MS. NICE did consider this, but it never got further than consideration (https://www.nice.org.uk/guidance/indevelopment/gid-tag415) . The only way that you could push for treatment is to reveal having an earlier demyelinating event identified and ratified to allow for a diagnosis of MS. Or hope that your Neuro is very proactive, rather than conservative.
whats CIS?