Confused
Hey guys!
Nice to digitally meet you!
I was diagnosed with MS in 2019, 2 months after my husband and I got married (not the wedding gift I'd ordered!), and then I've not seen my consultant since. So I'm basically none-the-wiser as to what type of MS I have. 🤷🏻♀️ It doesn't feel like RRMS because I don't have extreme bouts of relapse symptoms, but I do not have the same symptoms I've had before...some remain (like loyal "friends") but others have gone. I fear that now because I'm on Ocrevus (which is supposed to freeze onset) that I will never really know. Anyone else in this position?
Hi. I’ve been told I’m RRMS, but wouldn’t say I have extreme bouts of symptoms. Some times I’m good, some times I’m s**t. I’d say that you need to contact your consultant though, that’s really crap to go so long without speaking to them. I have had a similar situation with nurses leaving, and a couple of other excuses, and I’m starting to see that you do have to be “that person” sometimes. I tend to not make a fuss, but sometimes you really have to
Hey bit of a clue as an interim measure while ur waiting for someone to get back to u ……. What DMTS were u offered ? They don’t offer meds or only offer certain meds if u have certain types ie CIS, ppms & spms but they offer u a choice of quite a few If u have rrms (not sure about tumferative ms because it’s rarer) which is crap but at least it will give u some idea 🤷🏻♀️🧐🕵️♀️🔬