Kesimpta-saga continues... extended version..
Hey everyone,
Don't want to steal Ellenmcc's thunder, but her post was jùst the push i needed to write this one, a long one as well. I was really reluctant doing so, even scared maybe, because of all the reactions i got from so many people on my kesimpta question-post a while back, which were predominantly positive. Or at least comforting. Not to mension everyone considering what meds to choose, reading this. But ok, maybe it will help as well, in some way.
After i got home from the hospital, from my first jab in front of the ms-nurse, verything was fine. After aprx. 6or 7 hours, a got a mild headache and felt feverish. Like i was told could happen. But then, i started feeling short of breath, somewhat like my 1rst covid episode. Also it felt like an elastic band was tied around my chest. Toghether with an elephantsfoot planted on my chestbone. Then my heart was doing the bunny-hop. That's when i started to think it was jùst a lìttle bit strange. But got into bed early. Somehow i slept fairly ok. When i told my partner next day, he wàs worried and made me swear i would call the nurse. I didn't want to, but didn't want to lie to him either. So typed this e-consult. Half the time she responds late, if any, so was off the hook i thought. She called back within 3 minutes, urging me to call my gp.
Assistent asked some questions and told me to come in, in a few hours. And to call 112 if it got worse. Then within 5 min. my gp called. To come in nów. He send me to the regional-hospital for an ECG and some bloodtests.
Finally back at home, feeling exhausted, with this idiotic partying heart of mine, i changed into my nightie and curled up on the sofa with midsommer m. Then gp called. "Can you be at the em.room in about 30 minutes? They are expecting you". Bloodtest showed bloodclot markers. Ok. Nów i worry. BF was teaching a potter-class, so called my good-old, retired nurse, mum. I still thought this was all a tempest in a teapot. However, they told me i was their "guest" for at least 6 or 7hours. Mum said; "O, good thing i brought my sowing-magazine then." Ever the collected headnurse.. They placed electrode-patches, checked blood-pressure every 15 minutes, checked saturation, made an echo of my heart and 1 of the lungs, did a covidtest and many, many questions. And since i was in the big, university-hosp. now, also many, many trainee docs. Then came the CT-scan. With contrast. After countless mri's, no biggie. But this cont.liquid contained something that brought on an elergic reaction. Felt like knife-meets-chainsaw in my arm. They stopped immediately and slowed down the drip-speed. No luck. I asked how long the ct took. In all 10 minutes or so, but contrast part 20 seconds. Sooo, got an actual theether-kind-of-thing in my mouth and went oldschool. They thoroughly flushed with saltsolution. Afterwards i couldn't stop shaking and could barely walk back. There, i immediately fell asleep. The cardiologist came in and happend to be a former uni-chum of my neuro. He said he would give "Pete" a swift call right away. They chatted and discussed the results. I had a viral pneumonia, but that was a coincidence.
In short, (moehaha) neuro and cardio both believe the kesimpta brought this on and he will keep a close eye on me and will report all to both the pharmaceut and an indep. org. that inventories side-effects. You can imagine i wasn't keen on taking the 2nd one. Afterwards, the party started after just 1 hour instead of 6. And the symptoms lasted 6 days or so. 3rd one, after just 20 minutes and also lasted 6 days. It would be frightening if i wasn't told that, apart from the pneumo, everything is fine. It feels like your heart wants to jump out your chest and skip away. And feel rushed, even after mild activities. But the intensity decreases. I feel like an old woman, or what i imagine old women experiance. Just had to get this off my, eh, chest. And ofcourse, does this sounds familiar? Some parts?
Right, do feel tired now, nothing beats recalling events and put them in writing. In the middle of the night.
Tnx upfront