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@Jeng 

Last reply

Jeng

Brabio or Tecfidera🤔🙃

I was diagnosed RRMS in Dec 2020, the neurologist believes I've had it for 11 years. I've had 2 relapses in 2 years and currently have 1 active lesion (great way to end the year!) I have narrowed my choice of DMT down to Brabio 3xweek or Tecfidera, I like that Tecfidera is more effective and a pill form BUT I am terrified of JC Virus/PML, I met my (unhelpful) MS nurse yesterday (Jan2021) and I hoped that she could offer more support and advice but she basically said call us and let us know if/when/what drug you want to start on 😱...not what I was expecting. She did do my blood work up to send to Belgium for testing in prep for both drugs but I am terrified. I am considering not starting treatment and trying the overcoming multiple sclerosis 7 step recovery diet. I have done so much research, read medical papers & searched for personal experiences, I know every case of MS is unique but I am feeling so alone and scared. I don't know what to do 😕.
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@Amanda_Myers
@Amanda_Myers
 

Wow I was told this when I was diagnosed in 07 I was 19 and had my son on same day it first showed its nasty head x

@Henrietta
@Henrietta
 

Hi @Jeng I was diagnosed over the phone in July last year and was told minutes after the diagnosis: 'choose a DMD, either Aubagio or Tecfidera, and come back to us when you've decided' - at first I was like, what? really? not sure I want to start a drug! but then I watched a lot of Aaron Boster videos on YouTube, read a lot of posts here, mulled it over for a couple of weeks and went for Aubagio. I was convinced by the argument that DMDs can delay / prevent future attacks and that MS is always there in the background, possibly doing irreparable damage silently without us knowing. I'd say keep thinking about it, do your research, watch the Boster vids and if necessary call the MS Society who are super helpful and have an MS nurse you can talk to as well (I called them and chatted to a lovely woman for 40 mins who totally 'got' what I was worried about, it was a turning point for me). It is overwhelming at first, I really sympathise but it does get easier as you get used to it. Keep us posted with what you decide :) PS Why did your blood work have to go to Belgium?