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@JasFromTas 

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JasFromTas

MethylPred, relapses and black moods...

Hi all. Ok, so I have a couple of questions and will also (prob) have a bit of a vent (because I am cranky as hell and disappointed to be back on steroids). So I am 27, have RRMS since Nov '11 (officially, though I am in denial still a bit - although that is challenged daily...) and have had now 4 relapses in 18 months and have now been on Tysabri 8 months. I have an (out of relapse) EDSS of 4.0. Which gives me the cranky pants because all the literature I read talked about how 50% of RRMS will have a EDSS <2 at 15-20years (or some similar pro positive statistic. ) and I am super envious of That group! Why can't I be there!!! This latest relapse is balance and coordination (again). Just wondering when it will all end as I am so over thinking I am on a roll of "time out, relax, move on with life" and I get hit again. So very disappointed! So my questions... How long does the methpred take to work with most people? It usually takes weeks with me but this time I feel better already (and only having dose #3 now). I AM happy about this, but also sad (if it hasn't worked, I could have denied MS being the problem). And one else had a trot of relapses (with deficit) then suddenly go relapse free and improve? Any ideas for what may help - I can feel myself sliding into a black hole of thought and a feeling pretty down. I am trying to stay positive, but find I hard. I really want to know what my future holds, but then if I read stuff on 'prognosis' it scares the crap out of me! And I wish I didn't! Feeling pretty deflated. Thanks, Jas
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@krissie2012
@krissie2012
 

Aww Jas. *hug* I was diagnosed back in 2003 at 19 years old. I had an EDSS score of 1 right up until about 2 years ago. I have no idea what it is now, as it ranges quite a bit for me up to a 7 on the scale. :( Around 2 years ago, I started relapsing every 2-3 months and was put onto Tysabri last September. After that I still relapsed in November (ended up in the hospital for a week as I couldn't walk, get in/out of bed, or anything by myself, dodgey legs) and then I relapsed again in Feb, but so far so good, nothing since. I am hoping that now I have enough Tysabri in my system to give me a break from the relapses. If it makes anything improve even better. As we are all so very different, I think that trying to predict the prognosis is a lesson in futility. As far as I know, not one person follows the same progression as another. The oral steroids tend to help me after about 2 weeks typically but the IV steroids work by the second dose typically.

@Stumbler
@Stumbler
 

Jas, any failure in our body, which causes us day-to-day problems can cause obvious mood changes. Try not lo let your emotions run amok as this will interfere with your recovery. The steroids will be working for you over the course of a few weeks. Any immediate feelings of being super-woman will disappear as quickly as they appeared. So, look out for the "steroid crash". Just be kind to yourself over the next few weeks and allow the steroids to help your body recover.