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@Haymaj 

Last reply

Haymaj

Effective or safe?

Hi guys! I’m having a great deal of anxiety over starting Kesimpta. My neuro thinks my MS is aggressive based solely on how many lesions I have (just diagnosed), and none were showing active on my MRI. I have no symptoms right now. I would much rather go on a safer med, the side effects of Kesimpta/ Ocrevus scare me so much. More prone to infection? I’ve had two family members die in the past two years from taking immunosuppressants and then dying from an opportunistic infection. Possible cancer risk? That’s how the rest of my family dies. Ive changed my diet dramatically since diagnosis, all whole foods with mostly vegetables and fatty fish. No dairy, no legumes, no gluten. I want to try Copaxone as it’s a much higher safety profile. I guess I’m just looking for someone who may have some insight? Im trying not to stress as that does not help, and I’m afraid the stress from taking a medicine I fear may be worse than taking one that they say is “less effective.” TIA!
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@Aatiya
@Aatiya
 

Hi I take Kesimpta and started in August 2022. I went through some of the same anxiety around how it would effect me. I was diagnosed in December 2021 and had a second scan in June 2022 and I was due to start something else but was told not to as my lesions had increased. When I first took it, it really did knock me for six. Now nearly 6 months on, I hardly have any side effects and haven't had any infections. I still work a full time job although sometimes need a bit of extra time on a morning and currently fatigue is not great, which I'll be discussing with my doctor next week. At the end of tye day you have to make the bedt decision that you're happy with.

@kateeeeeeeee
@kateeeeeeeee
 

I’m sorry to hear about your family members passing. I have taken kesimpta for 18 months and am very happy with it. My MS was highly active and it has now calmed down dramatically. Your diet sounds much better than mine! Lol impressive work. Do you have a therapist or anyone you can talk through these feelings with? Specific to the risks and anxiety you’re speaking of. MS tends to send curve balls at us a fair bit so always good to have that person to try keep you mentally well.

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