@Gillyx 

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Gillyx

SPMS Oct 96

Hi I was diagnosed with RRMS Oct 96 over the years been on various DMDs told 4yrs ago now SPMS went on STATII Trial 2019, which I researched and asked Neuro to contact hospital doing Trial. Husband Diagnosed with Parkinsons feb 2020 at 54 1 year later June 2021 I was also diagnosed with RA had to come off STAII Trial because RA meds (Metaject) interfere with trial results. All this new news about Stem Cell Injections has me thinking is the criteria for this, despite saying could help progessive disease be so strict and difficult to meet actually make it impossible to be offered. My Neuro has no interest in helping progressive MS Patients so I worry once again at being refused. I did everything I could getting on DMD early took and changed to everything offered recommended by Neurologists as drugs started no longer being effective but here I am SPMS and chucked on the proverbial scrap heap.!! Go away and live/enjoy your life- therein said by the voice of someone who has no practical evidence/experince of MS wonder why I'm so cynical of all these new breakthrough treatments. I'm sure I'm not alone in this, and don't get me started on Postcode Lottery or Neuro at some hospitals having no interest on helping SPMS patients 🤔 well I did and followed everything the 'experts' told me to do wonder, what they've all learnt??!! #SPMSsucks
@VanessaJ

There's the huge multi arm trial started now around the country,the Octopus trial looking specifically at treatment for people with progressive forms of MS. I follow Dr Aaron Booster on YouTube. He describes the notion of secondary progressive ms as " hogwash"(he's American)..and talks about "smouldering ms".