Complaining about MS nurse
Hi everyone
I just wondered if anyone can help me? I seem to be having issues with getting a date for my DMT due this month? Iv been diagnosed since 2019 & started my currant medication in 2020 I take ocrevous every 6 months and used to be under Leeds clinic where they were very good at looking after me.
Since moving to Bradford they can’t ever seem to stick to or make a date for my meds this is the third time iv struggled for a date. I am due my medication this month and iv had no blood work forms sent and no date for my medication I am becoming increasing frustrated and nervous about everything.
I have emailed back and forth with the nurses but no luck and they are so slap dash who cares its starting to really get me down & tbh I just don’t know what to do, where to turn to or how to get help.
I’m worried they will take me off my meds because I luckily have been quite healthy since my initial diagnosis, they stopped giving me MRIs over 2 years ago and now this I am actually really worried.
Really hoping someone here might be able to give me some well needed advice.
Thank you.
Persistence Pays OFF- Been There many Times I Always Double Check a Month Out - It can Happen, make you feel unimportant cus They Don't Have Your Problem to Stay Consistent Every 6 Months. FYI - You can be Late to Infusion Date, I was told try not being more than a few weeks 😉
Thank you!! Ano everyone’s busy but I just didn’t have these issues when I was at Leeds. I was 2 1/2 weeks late on my medication last time & now I don’t have a date at all? If your late by 2/3 weeks every time will it not mess with the cycle?