@DoritoLover22 

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DoritoLover22

Sharing my thoughts 💬

Heyyy y'all! I wanted to hop on here and share some thoughts. So, here goes...MS used to be this big, scary thing I absolutely feared of getting in the past. Going through the experience of seeing my aunt and grandmother struggle with the disease and their ups and downs put a lot of fear and anxiety in me. When they were diagnosed, I started to read and study up on what Multiple Sclerosis was and the symptoms of it. So, when I started to develop issues that were unrelated to my other neurological problems, I was very aware that MS could be the cause. I was also deadly afraid of developing something where the only treatment was injections. Since I was a kid, I was terrified of needles. And after the experience of administering injections to my aunt and grandmother, I was concerned about how I would react to the prescribed medication. I think I've mentioned this before, but I don't like pills 💊 and would rather take an injectable instead of a pill of some sort. So, it's been a little over 3 months since I've been diagnosed. I've started treatment, and for the past 2 years or so, I've been learning how to deal and cope with having MS. Of course, it's been one hell of a roller coaster ride. I've had to deal with all kinds of symptoms and sensations going on in my body. I've had to deal with grief and loss around having to give up my job as a massage therapist. I've been poked and prodded for all kinds of tests and procedures. I've had my emotional ups and downs. But I don't fear having MS anymore. I've been able to get a lot of support from others, like all of you, who get it. I've learned to advocate for myself with my medical care. I take my prescribed meds. And I do what I can to take care of myself. I'm grateful that it's not worse for me because I know it is worse for so many others dealing with this disease. While I didn't ask for this disease and it comes with, I'm grateful to know that I'm not alone in my journey. I'm learning to manage it and do what's best for my situation 💖 Thanks for reading 😊
@jamoranto

Don’t worry @Doritolover22 the struggle gets even stronger I’m feeling the crap gap myself right now. Get infusion of ocrevus in 2 days

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@SunniAR

hi glad you started to deal with ms and kinda accept as a part of your life i was the first in everyway in my community my character get nervous angry easy and i shake when i do out of nervousness reject change or anything different in my life - We are Arabs. We do not eat the living dead. We desire chivalry even if it returns to my head - so unconsciously refused to believe i have it resent years kinda believed it my aunt has it and my uncle too another prove i have it but i always hsdvthid belirve “ it dorsnt suit me” and wrote a note on my mirror after reading a post online i wrote “you can beat it” In the name of Allah, the most gracious, the most merciful: (Praise be to Allah, to whom belongs whatever is in the heavens and whatever is in the earth, and to Him belongs all praise in the Hereafter, and He is the All-Wise, the All-Aware” [Saba: 1] in america prof joseph herbert manhattan said I’ll be bed bound 2011 probably im not disabled any how