Diagnosed end of September 2020.
Just got email today that im jc positive. Typical! I want to shout out f u but Im tired. Stuff on my mind eg Im wondering how to tell my boss im leaving for most of the day for an infusion. I dont want to tell work about my diagnosis. Ill be offline for most of one day every month for tysabri, they're gonna notice after a while i have a medical appointment every month!
The feels I have for you man especially being tired You're going to deal with that a lot best to get your team whoever's helping you to be involved and letting people know about the things you can do because the quality of life is basically the choices you make you believe me this choice is going to be made eventually ✌️be strong friend ❤️
@Darbs , being JC+ is quite common. This can be a risk when on Tysabri. But your antibody levels will be closely monitored, to ensure that they are within safe levels. Disclosing our diagnosis is a personal decision. There are many advantages to letting your employer know, "in confidence", to get their support for any requirements, e.g. time off for infusions.