@Crystal-2017 

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Crystal-2017

Newbie

Hi everyone, i am new to this site, so please bear with me. I was diagnosed on 5th October 2017 with Primary Progressive MS. Unfortunately the neurologist who gave me the news, made me feel like my life had ended. He was so negative and said there is nothing they can do for it. I am awaiting results on a further MRI scan for neck and back, which hopefully I will get in time for next week when I see a MS neurologist, which i am having to pay for, as the NHS had left me until mid Jan next year before I would be seen. I feel like when I look on some sites or the internet, it is more doom and gloom. Has anyone any positives to come out of this terrible condition please? My legs are affected so I am unable to train at the gym, something I have done all my adult life. Has anyone else been able to get back to being active? Thank you for taking the time to read my post 😃
@EdmontonAlberta

@crystal-2017 I might be the person to help since I was diagnosed with PPMS in January & have done lots of research. The challenge of answering is two-fold. First, your profile shares nothing; age, relationship status, work history, your location, etc... If you are uncomfortable about posting this information, we can chat in private. I sent you a friend request - shift.ms friends have a private conversation option. Second, I am heading out the door in a minute to go visit my Dad. I will be back in about four hours. Gord

@Stumbler

Hi @crystal-2017 and welcome. We don't do doom and gloom on this forum. Well, we try not to as we find that a positive mental attitude is a good basis to move forward. And, we need those endorphins. We also advise to avoid Dr. Google, for the reasons you mentioned. You're wise to see someone privately. This is a far quicker option, if finances permit. It will be interesting to see if this further scan confirms your Primary Progressive (PPMS) diagnosis or not. Otherwise, you need to live healthily, eat healthily and, do your best to, avoid stress. Exercise is important. Whilst you may not be able to have the workouts that you used to, some gentle exercise in moderation is good. Or even try swimming.