@Clary 

Last reply

Clary

Stressing out about drugs

I don’t know why I am stressing out. But I am. I want a high efficacy drug. However, I have not been offered one. I feel I may have to battle all the clinicians to get somewhere. This is also stressing me out. I wish I could be, at least, offered high efficacy drugs instead of wasting my life, possibly literary. 🤷‍♀️. Sorry, just need to vent and was wondering if anyone has been in a similar situation. Thanks.
@mattltsmith

I was really worried that I would have to fight for high efficacy treatment, but I sat down with my neurologist and explained that's what I wanted and she listened to me. She was originally going to offer me Tecfidera, but I will instead be starting Ocrevus next week. I will add that my neurologist was really wonderful and she started our conversation by asking me if I'd done any research and if I had any thoughts on what drug I would like to take, and she only said she had been thinking of Tecfidera after I said I was thinking of Ocrevus, and then I explained my thinking and why I didn't want to take Tecfidera and she agreed with me. So I can't promise your neurologist will take the same tact as mine, but in my experience having been very vocal about my wants and needs when it comes to treatment my team have listened to me every step of the way. Wishing you luck and hope you can get what you want.

1
@Clary

Thank you @matt for your reply about your experience. It sounds like you had a good neurologist. I think if I could speak with my neurologist I would feel better. Unfortunately I have no planned appointment until next year. I could try to get an appointment. 🤞

2