Tysabri or Ocrevus
Hey guys,
Its been a little while since I have posted on here!I hope you are all doing okay.
So, turns out the Tec isn't working for me as my recent MRI showed new lesions on my brain and spine. I have been given the option to go on either Tysabri or Ocrevus. I have been doing so much research and I'm still unsure of which DMD to choose 🙃 with Tysabri, the whole JC virus and PML does scare me slightly....any advice would be appreciated 💜💜
Hi @Bettyarcher, I started on Tysabri in January and can honestly say I feel better than I have in years. This is my first DMT so I can't compare it to anything else. I wasn't offered Ocrevus as I had treatment for breast cancer a couple of years ago and it increases risk of recurrence, I think. Tysabri we the most effective treatment I was offered. The PML thing does keep me awake in the middle of the night sometimes especially once I found out I am JC + . I have been reassured that the chances are low and I will be regularly assessed. And I feel so much better it seems worth the of sleepless night!
Hi @Bettyarcher I was on tysabri to start with and after my second session I had a really bad reaction so they had to move me to another dmt so they moved me to ocrevus and I’m ok with it once I’ve had it I’m just tired that’s it really and it’s every 6 months where as tysabri is every month so it depends on how many times you want to go to the hospital for the infusions