@Archer1 

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Archer1

It's not the same...

I had a really bad day yesterday with fatigue and brain fog. Everything was a battle, but I still had to go to work and just get through it somehow. I got home, my husband asked how my day was and I told him how I had really struggled. He said "oh I get that too sometimes". Like...no. I love my husband more than life itself, but it's just not the same. He might have a bad night's sleep, which makes him a bit groggy the next day but overall he's fine. That is NOT the same as fatigue. I know he's just trying to offer support, and as I'm fairly newly diagnosed it's still a learning curve for the both of us. It just annoys me so much when people think that they know what it's like, and when they try to offer (usually well-intentioned) advice like "just have an early night". I can't be the only one who gets frustrated by this, do you guys get this too?
@Sophiemini

I can completely relate!!! My husband is a very caring, extremely patient, selfless person and my best friend in the world, bit yes, exactly what you have just said!!! I don't want him to stop listening to me but I feel like having such a go at him when he does that!! Sometimes you want someone to just listen rather than relate, especially when they can't truly relate. Hope it helps to know you're not alone with this one!? Soph

@Marcat

It's always like that with everyone... I'm currently at home and sometimes I feel ashamed to say "I'm so tired" when my boyfriend and mother are working all day long... Ms fatigue is something that not Ms patients don't understand and feeling like this is quite a bit of a challenge.. But living with it for 17 years is something I got used to...so I rearly complain...keep strong! Marta