@Ally_Rodgers

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Ally_Rodgers

I'm in limboland

Help. I've been I'll for over 4 years now and told more than once it's all in my head. Last 5 months things have got worse and worse with dizziness, sickness, loss of hearing, loss of vision, upset innards, insomhia etc etc. Its totally taken over my life. To have a young Dr say its stress was beyond me. Then a couple of manic trips to A and E resulted in diagnosis of first labyrinthitis, and then BPPV or Menieres disease. 4months to see a neurologist who now dats its neither of those and I need an MRI scan. Xmas Eve found me having that. To say it's been a crappy xmas is not in it I've even struggled to work feeling horrendous. Firtunatelybi only work part time as I'm 66 just its horrid. I'm usually very active and busy and it's all come crashing down. I need a walking stick now. I've been told its 2 months before I now see ths neurologist again. For Gods sake how long does this go on for folks? I'm so sick of not knowing what I've got, you cant move forward or anything. I've had to cancel a cruise i was due to pay a shed load of balance on as I wont be insured as no diagnosis. I'm fed up! Someone please tell me it gets better. They wouldn't keep animals waiting like this would they?

Stumbler

@Stumbler

@ally_rodgers , yes, it is a very frustrating time. And, you're not alone in going through it now and there are many others that have been through it and come out of the other side. So, it's not unusual, unfortunately. It's the human body. It's a complicated piece of machinery. I'm sure Doctors would like a window to see inside. And, neurological ailments are the most difficult to diagnose, with neurological services being well over-stretched. But, having said all that, it isn't nice to be dismissed with an arbitrary diagnosis of stress, even if that could be a contributory factor in what's going on. So, whilst you're waiting, live healthily, eat healthily and manage yours stress levels. Also, maintain a symptom diary, where you can record all these strange medical issues that you are having. That will then enable you to summarise your symptoms onto a concise list for the Neurologist. https://www.mstrust.org.uk/a-z/diary-symptoms

Ally_Rodgers

@Ally_Rodgers

Thank you talking helps. I have been keeping an illness diary for five months now as it happens. I'm recording when attacks happen etc and what time I get up, if I've got insomnia, bad heads etc. I know how important it is from 4 years ago when I found out I'm allergic to wheat by keeping a food diary. So I'm ahead of the game, just want it to speed up and get diagnosis now. I know the NHS are overstretched. But being 66 years old I want to make the most of retirement and my latter years so hopefully I won't have to wait too long! Got too much to pack into my life yet!

ItsMewithMS

@ItsMewithMS

Diagnosing MS is complicated as you need to rule everything else out and then confirm MS. Typically this is done through MRI and some still use Lumbar Puncture. Only some lesions can be seen on an MRI depending on where they are grey matter/white matter, etc. Keep up your diary and develop your question list by learning as much as you can here, and elsewhere. I really like Dr Boster's You Tube site. This is one of his videos on diagnosis. https://www.youtube.com/watch?v=0csvVXatlFo&t=32s The MRIs are usually done "with" and without contrast". If you have MS Activity they will see active inflammation with that so is useful. If you are not having activity/attack they may not use and if the are using a newer 3T MRI they won't need it. Good to ask what model of MRI machine they have and are using. Good luck!