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Hi and welcome to this ms sufferers website

I was diagnosed with relapsing remitting ms 20 some years ago, my memory has been badly affected and I really struggle with a very over active temper which I struggle to control which means I tend to shout. Perhaps my family don't tend to help me with. My mum is a nurse who thinks she knows everything but she does not have understanding or empathy for what I struggle with, eg walking and feeling or my emotional struggle with things everyone else can do easily. Seems unfair to me.

My mum used to be a nurse, and she was the same empathetically growing up. I think working in a profession that sees a lot, you have to mentally tune out or switch off. Doesn’t make it fair at all, but it is part of the job I guess. I know for me, MS is a really hard thing to explain correctly to help people understand what I’m feeling, so I assume it is a hard one to understand from the outside too. I tend to keep to myself a lot, and don’t open up to a lot of people, because it frustrates me being told “I've had pins and needles before, seems like you could just shake it off”. Do you have some sort of release for your overactive temper? Or someone who does understand what you struggle with outside of your mum?


Nice to meet youv