Last reply 2 months ago
Ups and downs

Hi all, thought I had it sussed this MS after 4 years and permanent symptoms left due to spinal lesson affecting arm and leg sensation. Lockdown has seriously challenged me and deconditioned me, body now reacting. How do you pick yourself up and dust yourself down and stay positive! New treatment change is also playing on my mind as step change on lesson load. Any advice to remain positive?

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itsmewithms
2 months ago

Any chance you could get in for some PT? I am in an area with increasing C-19 so while places are starting to open up I don’t want to risk exposure. I am looking forward to meeting back up with the trainer I was working with as he is good at coming up with new exercises that challenge me. When I was working I could find a “walking buddy” to circle the building on a bit of a break that would keep my mind from the act. While at home by myself I allow myself my workout time to watch my soap opera…it makes me look forward to getting on the bike and working out…For me I just need the time and the distraction and I like getting in some activity- and the more you do today then the more you can do tomorrow…a step at a time


houdini
2 months ago

@itsmewithms thank you I will look into personal therapy. I do not exercise at all and that’s not helping I know. I am fighting not letting MS just consume me, not great at times though.


stumbler
2 months ago

@houdini , contact your MS Nurse to arrange the physiotherapy.


houdini
2 months ago

@stumbler thank you, I am embarrassed to say I had physio fir a year then List my brother and did not go back. I was awful at practicing the exercises given so felt a fraud going back! 😩 I will I think start picking up longer walks as a small start.


itsmewithms
2 months ago

I’ve had varying success with PTs. It kind of depends on who writes the order in the US and what it is written for. I have compounding issues. I had a dislocated big toe (I ignored after it was “fixed” and didn’t want it touched for like 6 months :-0 ) and also footdrop from MS that likely messed with my hip (along with the toe) and resulted in a hip replacement.

The first order was written regarding the hip and so she focused on that and not so much the impact of MS. After I moved I found another place and specifically sought out someone strong in Neuro stuff. He was great and we were going along well until C-19 hit. It is actually really at about it’s worst around here right now so still on hiatus. He left me with some exercises and I have picked up more on-line…there are so many options…

Walks would be good if you have a good spot for that. I am in the country and really do not. I do try to get outside and do more (sunshine and fresh air helps with sleep too) but do more in our little exercise room and from on-line ideas from people that specifically work with MS folks. If you search up a PT person just make sure they have training for issues such as ours- Good luck! I’m going out to pick our raspberries…that will be my hour in sun stretching and walking today but it about wears me out for a few hours 😉


houdini
2 months ago

@itsmewithms Thank you great advice. Maybe online will suit me better. I will look into that this weekend. I love raspberries! 🤗

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