Last reply 5 months ago

Live for today. Tomarrow is a gift not promised. Find the good no matter how bad.

I say no cause no cure why the pricy meds? They say they help with relapses. Hmm okay. Well, I have been on my fav copaxone for over 14years. I don’t do rebif it was suicidal Tecfidera made me rudolf the reindeer with redness. I don’t want all the side effects of most meds. I am strick to stay as authenti as possible. I know i am lit up head neck and spine now. As when my other neurop said I am secondary just treat symptoms I lit up over a year not on anything. Still not doing great but i am a fighter. So it is what it is. Now with trigemnal neuralgia I am on seizure meds that make me so so sleepy. heartburn meds for GERD and thinking of which to change to. I am good with my cannibus oil card but it is too expensive. Ins does not pay for cannibus oil.

I enjoy my bullkita and husky dogs. They are hugh but keep me going.

I am mindful. stay in the moment. With mS its a rollercoaster never know what the next hour will bring. Its the only thing that stays the same is change. Changes non stop with ms. Just roll with it. Ride the wave of life.

I love my husker football season is about to start. The tailgating food is tasty.

Love trying new recipies.
Working on kon marie cleaning and minimalization.

Bye to high heals, Bye to dancing. Bye to traveling very far. Bye to the old me. Bye to my hometown. Bye to suntanning and swimming and boating. Bye to alot of hopes and dreams. Hello to new experiences. Hello to new pace SLOW! Hello to bath tub rails Hello to healthy foods and exercise slowly. hello to the ice cold house. Hello to peace and quiet and loving myself not taking abuse or narcisstic people.

Acceptance. Be positive and focus on yourself.

I wake up and think what to do today. Then I do it if a good day or pace myself and do what I can and what I hoped to do try the next day. It is a optomistic way of life. I do tend to overdo it on my good days and usually will pay within the week for doing that.

It is important to get proper sleep and good sleep. It is a big factor in success beating this MS Monster!

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5 months ago

What a good attitude, @marianne_wilson πŸ˜‰

5 months ago

@stumbler Thank you. Sending you sunshine and happiness!

5 months ago

Rebef was suicidal
vwell said

5 months ago

@marianne_wilson, that was a great post for me to end my day on. Thanks, well said! 😊😊😊

5 months ago

@vixen have a blessed evening

5 months ago

@nutshell88 Glad there is other options for us. Stay strong. Know MS is not the same for everyone

5 months ago

we sure are the strongest.
MS is an illness that crossed our way but can not stop us from living

5 months ago

@nutshell88 yes! WE are warriors. It may have won the battle but we will win the war! It is a blessing to have new ms brothers and sisters that GET the life we have. It is nie to have people who support us! be blessed

5 months ago

Great read @marriane_wilson
Thank you. Got a question about your past Tecfidera Medication.
I was told to go by my Neurologist to go off it and he put me on Ocrevus which I am completely happy with.
Did U find Tecfidera a good medicine to take? I understand it’s better than daily shots of copaxone I got over the hassle and enjoyed the morning wake up actually. Hah
Best Jorge


Note : unfortunate typo corrected to avoid embarrassment. (admin – Stumbler)

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