Not doing good. :(
I ended up in the ER this past Monday with what I was convinced was a bladder infection, but according to the doctors, it was a bacterial infection that was attacking my bladder. Went to the doctor yesterday, he diagnosed me with a UTI and possible kidney infection. I'm in serious pain and on 2 antibiotics and generic AZO for pain. Yesterday I peed 14 times between 9:30pm Tuesday night and 6pm yesterday evening! It was nerve-wracking! I'm being referred to a urologist.
My doctor told me to use a wheelchair whenever I go anywhere that involves a lot of walking, because excessive walking can damage my legs. I told him that I had gone to the mall with my 3 teenage daughters last Saturday do Homecoming dress and shoes shopping, but started getting dizzy and very tired from walking around with my crutches, plus my daughters had to hold me when we were on the escalators because I couldn't stand up on my own. It was the first time I'd gone to the mall since getting sick and I was apparently unprepared. But the doctor said to use a wheelchair next time.
He doesn't want to order anymore MS tests on me since I finally see my neurologist next Monday. He doesn't want to order one thing, only to have the neurologist want something different. Makes sense.
I don't see where in the world you are but if in the US the ADA requires accessibility so search out the elevator if you can...unless they consider the escalator their option. It sounds like a lot of MS people have issues with them. I didn't until more recently and thought it was just me. My Neuro wants me in ASAP if I have new issues for more than 24 hrs but it looks like you are still undiagnosed on your profile. I'm popped into an MRI pretty quickly for them to check for lesions and load me with steroids if they see anything active. Bladder issues also occur with MS so it may all tie together. My bladder issues are more with urgency and hesitancy. Any type of infection or immune challenge can also trigger MS to that is all info to be aware of and bring with you to the neuro. Even though my Neuro is very busy and can't always be reached he has an assistant and/or number with a Dr available 24x7. See what kind of support or advice you can get even with an appt on Monday...
@itsmewithms I live in the US, in Michigan. You made a good point about the ADA law. The mall does not have elevators, and there are only 2 stores with escalators because they have 2 levels. The rest are one-level stores. But getting on those escalators scared the living hell out of me. No I still haven't been officially diagnosed yet, which is why I'm seeing a neurologist. The fact my MRI was done without contrast has raised some eyebrows. I'm hoping my neurologist will have some ideas of where to go from here. The antibiotic I'm on for my bladder infection is attacking my anxiety and making me feel like I'm about to go crazy and lose my mind. I absolutely can't wait to get rid of this sh**! I feel like death warmed over. I'm so tempted to throw away my antibiotics and just use CBD oil.