Last reply 5 months ago
Newly diagnosed

Hey everyone.

Lyndsey from Glasgow here!

I was diagnosed with RRMS on 26th Nov. After a terrible time with brain fog since June 2018 and very random symptoms I was finally diagnosed.

I’m relatively fit and healthy but also very realistic about potential relapses.

I’m here to meet people to chat to and hope to get some help and support along the way. I meet my MS nurse on 10th Dec and starting on Avonex.

Feel free to drop by and have a chat.

L x

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highlander
5 months ago

@lmac91
Hi and welcome to the club.
Feel free to ask anything you like we’ll try and find an answer one way or another.
Under your post above you’ll see some boxes relating to some of the things that you mentioned.
Click on them and it’ll take you to other posts made about that subject.
Welcome again…
It’s not all doom and gloom….


watsoncraig
5 months ago

Hi, you can also search for things by clicking the magnifying glass on the forum Home page.


dominics
5 months ago

Morning Lyndsey,

I notice that is us more mature *coughs* folks who have all had MS for a while that have said hello.

Advice is hard. A comment would be that if/when there are issues, you are not alone and people are here, MS can mess with your head.

Read all you can. Ask your nurse and neuro questions. Nothing is a stupid qu. It can be a tricky thing to get your head around (not sure I ever did it until my 40s) but try and keep your health in 5, 10, 15y in mind when you make decisions now.

Best,

Dom


peterfrancis
5 months ago

@Imac91

Hello and welcome aboard.


lmac91
5 months ago

Thanks for everyone’s replies and support it really means a lot to me!

I’m hoping to do some fundraising – has anyone else got plans to do the same?


rachiervn1983
5 months ago

Hello 🙂


emma_t
5 months ago

Hello @lmac91 🙂. I’m from Glasgow too, almost at the end of all this, have an appointment with an MS consultant 23rd December after having what they think is 2 relapses back to back and it all started in June. Anyway, just wanna say hi and there’s someone here just doon the road 😊.


rel12
5 months ago

Hi @lmac91 & welcome! 🙂

Also diagnosed in 2018 after a long journey of confusing/mystery symptoms and doctor visits. I hope you get the help you need & good luck with Avonex!


lmac91
5 months ago

Hi Emma_t hope your doing well. Keep me posted on your visit on the 23rd! Just hang in there and your consultant will be on the ball im sure. Probs have the same neurologist 😊. I’m here if you want to chat!

@rel12 hope your keeping well. What DMD are you taking? I’m a bit worried about the flu symptoms I may have as I work full time and don’t want it to take over my weekends when I’m off x

@rachiervn1983 nice to meet you! Thanks for the welcome 😊


rel12
5 months ago

@lmac91 I am hopefully going to start on Aubagio soon. I just have few things to do before they can approve it for me. I was on Copaxone but my body did not react very well to it & I did not see any changes. Most of the treatments do have flu-like symptoms as a side effect but don’t be scared by it. Everyone has a different experience with these treatments, just remember the first few days-weeks may bring some changes but that is the body trying to adjust. It will all work out 🙂


stevenh67
5 months ago

Hi,

Welcome. Hope you’re well.
Myself, work colleagues, family and friends completed our MS Walk in September and raised a decent amount of cash for MS Society Scotland. The team there were excellent in helping us sort things, getting medals and certificates. Hope that helps and good luck with it all.


lmac91
5 months ago

@stevenh67 Thanks Steven will look into that. Hoping to do a few 10ks 😊

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