Newbie wanting to say hi :)
Just signed up. 5 years diagnosed with RR.
Been on Gilenya 18 months so far so good.
Wanting to reach out and see how others are doing, what meds work for you and how's your fatigue levels. I've struggled to get out of bed most days. Lost TWO jobs since the Summer :,( but nobody in the workplace understands. I'm most certainly not lazy.
New job starts Monday. Just pray I can get out of bed! 🙏
Hello @apple75 and welcome to i have been diagnosed for three years and am currently on Tecfidera which seems to be going OK. My fatigue levels changed a lot and seem to be under more control since following a particular diet for the last 2 years, high is Keto. But there are lots of others which suit different people. I have just gone down to working part time which is working out much better. Have had to find a way to make the finances work, but hey ho. Good luck with starting your new job! X
Never took that but recently found the You Tube set of videos Life of Seb and some of the early videos were when he was on Gilenya it sounds like the first week was rough and then he liked it until he had to go off it. If you haven't tried his You Tube Channel check it out- The very first video dicusses it and his journey https://www.youtube.com/channel/UCJEAgWFRLfJVtfSRzjmpN0A