Last reply 8 months ago
New Aussie

Hey guys, this is all new to me, I don’t even like to talk about the fact I have MS, I was diagnosed April 2018 after most of my body went numb (all better now tho) I guess i just want to say hi, I live a relatively normal life these days I suffer from fatigue and dizzy spells but otherwise I think I’m doing ok. My muscles ache especially in my back and neck a lot and I get niggling pains all over my body. Doctors just shrug all my complaints off and my neurologist while positive doesn’t really explain much to me most of what I no about my illness I have found on google. I am probably still in denial over the whole thing to tell you the truth. I have ocrevus every 6 months and that seems to be doing it’s job so I’m happy to continue with that, otherwise I just take it 1 day at a time and just hope my attacks stay away and I can live my best life with my two little girls and amazing husband. I look forward to being Abe to get insight from people who actually no what I’m going through.

Cheers everyone x

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rmdaniels
8 months ago

@mrsking
Welcome & thanks for sharing a bit of your journey with us! It’s very positive to hear you’re doing well with Ocrevus. I’m considering switching from Tecfidera to Ocrevus. Like your experience, it seems like my neurologist is reluctant to give me much information! I’m totally surprised by the lack of communication. This has been a GREAT place for me to find out more about this beast! @stumbler @highlander @dominicks are always posting links to great articles from the most reliable sources that I’ve found very helpful! I wish you all the best!!!


mrsking
8 months ago

Hey there @rmdaniels thank you for your reply It’s nice to no I’m not alone with all this! Sometimes it feels that way! Thank you for the info I will keep an eye out for the links. All the best to you to! X


Anonymous
8 months ago

@mreking
I too was in denial and hoped that I had something else. Although I told my husband and son I kept it from the rest of my family until it was obvious that there was something wrong with me. I suppose that I didn’t want to be treated any differently. But of course that has happened and I have had to accept help and be pushed around in a wheelchair when on holiday in my home country Cyprus. It is kind of embarrassing because my sisters and brother-in-law are 10 to 15 years older than me! I am so glad I found this site because I don’t feel so alone in my experience and it’s good to hear others feedback.


mrsking
8 months ago

@silvana_hansen
Hi there, I’m kind of in limbo with my diagnosis I no I have it and I have told all my immediate family, but your spot on with the not wanting to be treated differently I think, so I don’t like to broadcast it to everyone else. My husband and best friend are great they no what I’m like and no one I have told make me feel insecure about it all. I’m quiet glad I’ve found this site aswell, as I hate talking about it all but there is something comforting in the fact that we are all strangers, it’s easier for me that way I guess and it’s comforting to read others stories and how similar they are to mine. Thank you for your reply! And I wish you well


vixen
8 months ago

Hi and welcome @mrsking. There is real comfort in the solace and company of strangers. For lots of people, including me, this is the first venture into social media. It has met so many things for me, mainly to know that others know what I am thinking and feeling without having to explain myself! I waiting for at least a year before telling people outside of my nearest and dearest. By then, I knew how I felt about the diagnosis which, to be honest, does take some time to process! Anyway, lots of useful advice on here, and check out the map function to see if there are any others in your area x


rebecca_adams
8 months ago

Welcome.I’m a newbie ..just got diagnosed 29 July 2019..couple of weeks ago..but been sick for 6 months..I’m 43 ..5 kids ..I have been through hell ..but hoping I will get some normality back ..pain relief is a god send..but at the moment I’m in recovery mode ..so I’m on a journey to get me on the right treatment for me..good luck in our


tonyms47
8 months ago

@mrsking
Welcome to the forum.
All you can do is take every day as it comes. Groups like this help a lot, and I wonder how people managed in the days before the Internet!
I was wondering if there were any local groups around the area where you live that you may be able to attend? That’s always a good place to go. Failing that, the Internet can be daunting, but there are a lot of great people around and you usually find an answer to a question that’s been going around your mind for some time.

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