Last reply 1 month ago
Ms and early pregnancy

Hi everyone!
I am 31 and currently 6 weeks pregnant with my first baby and I am suffering with the dreaded MS! I was under the impression MS is stable through pregnancy but this has not been the case for me for the last 3 weeks 🙁
I’m just wondering if anyone has had a similar experience at all? Last Year when I came off fingolimod I had 2 bad relapses effecting my balance, legs and bad hypersensitivity. These symptoms seem to have reappeared since pregnancy and I’m struggling, especially with the pregnancy symptoms too. I haven’t got anything new so my nurse thinks it’s just flaring up because pregnancy takes everything from you and it’s new to my body, I don’t know 🙁

Any experiences welcome!

Thank you!

Roxanne x

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itsmewithms
1 month ago

The words “MS” first appeared on my med chart when I was in my first (and only) pregnancy. In my 2nd trimester I developed a persistant blind spot in one eye. It was small and kidney shaped and in that area there was a black/white zig zag pattern instead of normal vision. There was no pain and no blurriness. I went through a lot of tests and observation (visual field test etc.) At that time (2001) they weren’t sure if MRIs were safe at this stage of fetal development due to inner ear development. I think they now say it is safe. The agreement was once I had delivered I would have further tests to see if the vision issues were ON related to MS.

In the third trimester the blind spot went away. I went into labor 4 weeks early but delivered normally and the baby was fine and while small was healthy and went home at the typical 2 days mark. She was behind the normal growth markers for the first couple of years but then caught up and was a healthy baby and toddler only having an ear infection 2 times. I exclusively breast fed her initially and then introduced solids, etc as typical and then she caught up. She was soon on the top end of the growth charts. She just graduated high school this year – so, obviously everything worked out fine 😉 It is very typical for any MS symptoms a woman has go away in the 3rd trimester. I had MS symptoms (foot sticking out funny all of a sudden one morning) when my daughter was 3 that lead to my official diagnosis of MS.

Dr Boster covers pregnancy in this video- he had hundreds of helpful videos on many topics- https://www.youtube.com/watch?v=m9HXFLu2a1M&t=4s

Good luck! if you click the “pregnancy” tag below your post you will likely be rewarded with a lot of previous discussions-

@itsmewithms thank you so much for your reply! I will have a look at the video and the pregnancy posts on here 🙂 I am seriously considering going back on baclofen to help with my leg spasms as it’s really effecting my quality of life and I can’t relax even though I’m so tired!xx


itsmewithms
1 month ago

@roxanne_nicole_howarth have you discussed it with your neuro? there may be alternatives that aren’t a concern during pregnancy? I also make sure and have enough MG and Ca…not sure if you have different types of OBGyns and primaries there but in the US we have “functional” Drs that try to cure things through your diet and lifestyle and “integrated” Drs as well. They may propose more alternatives as well that may be good options during pregnancy. Problem here is that it takes so long to get in to see them the baby will be born! ;-0

@itsmewithms yes I have spoken to them, well my ms nurse. I have another specialist that deals with my disease modifying drugs but they say to run things past my doc. My doc has just rang and said shes spoken to ms society and they said baclofen is widely used in pregnancy and my dose is small so them and gp are happy for me to take it. I’ve ordered some leg magnesium leg spray and got coconut water (both been recommended) so if I have no joy with them I will go back on baclofen


itsmewithms
1 month ago

I would get annoying leg spasms when sitting around in the afternoon and then again right at bed time. Seldom would they be painful but they would prevent me from relaxing and getting to sleep. I also complained of fatigue that would set it, more like “heavy leg” on my right (side of drop foot and hip replacement), after about 30 minutes of use.

I was prescribed a drug for it (Modafinil) that my insurance company did not approve and suggested Amantadine. I don’t find that it helps the fatigue that builds after walking but it has shut down the afternoon and evening spasms so I like it for that. It also seems to impact spastacity. I will take what I can get 😉 You could see if that is an option- I have no idea if it is allowed during pregnancy as it is also used for Parkinson’s which is a different profile altogether 😉

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