Last reply 2 months ago
Ladies on lamotrigine

Hi guys. I’ve got epilepsy because of a lesion (yay), and talking to my gp, hes said that when I do start trying for kids, to discuss with him first because of my lamotrigine. So, obviously, I’ve looked on the bnf (a very good resource for looking at meds, and its what health professionals use) and women have to be careful when using lamotrigine because of an increased risk of defects in a foetus. I have never *ever* been told about this, from my consultant to my ms nurses, absolute nada. Nor previous gp’s at home or uni. Has anyone else experienced this? Has anyone else had a child while on lamotrigine? Obviously, me and my partner want to have kids, and again, I’m wary of meds and pregnancy like ocrelizumab. 🙈

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stumbler
2 months ago

@charlotte_wright , a lesion for epilepsy and also a diagnosis of MS? Who diagnosed these two conditions? I only ask because of the common factor of the lesion.

Our medical professionals are not able to know everything about all the drugs which are prescribed today. They either have their own area of expertise or are General Practitioners (GPs), i.e. Jacks of all trades, Masters of none.

That doesn’t excuse any of them from not doing their research.

Who actually prescribed the Lamotrigine? And have they discussed your maternal aspirations?

I just feel that you need a full medical review, where you need to divulge your plans……….


charlotte_wright
2 months ago

Thank you, @stumbler. The epilepsy was diagnosed by my first ms neurologist, De A and 2 other neurologists, but because I started my seizures quite late on, at 18, there were more tests and they found my ms. My lesion is on my temporal lobe, and my seizures match with the partial seizures TLE gives. I have been telling my team for the past couple of years, now I’m in a stable relationship, that I do want children. Obviously, my first neuro, Dr A, had thought ahead and had me on copaxone. Then he left the area, and I’m with Dr B now, and he’s done a couple of reviews, including one with my partner present and me specifically asking about kids. There were no issues brought up then. Neither with my ms nurses who I’ve been having a laugh with and when I did find my partner, I did tell them I would like to start a family with him.

I think my gp may have done lots of digging for me. I had to double check the BNF, and although theres no mention under lamotrigine, there is mention of the dangers under epilepsy. (I did 2 years of my nursing degree before I dropped out, and the BNF is now my medicine bible). Do you think it’s just a new thing they’ve found lamotrigine does, after a study?


stumbler
2 months ago

@charlotte_wright , on the basis that MS is notoriously difficult to diagnose, it follows that misdiagnosis is always potentially possible. That’s backed up with comments like this from the NHS:-

“Epilepsy is slightly more common in people with multiple sclerosis (MS). Focal seizures are the most common type in MS, accounting for nearly 70% of seizures. In MS, lesions in the brain and spinal cord can cause involuntary movements that look like seizures.”

I also found this fairly up-to-date statement:-

https://www.medicinesinpregnancy.org/bumps/monographs/USE-OF-LAMOTRIGINE-IN-PREGNANCY/

Having read it, I’m not entirely sure what they’re saying!

By the way, I have no medical background………….


stumbler
2 months ago

Oops, that top quote was from http://www.epilepsy.com, not the NHS. Oops!

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