Last reply 2 months ago
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Hi. I’m Constance. I was diagnosed with PPMS in 2010 but had symptoms 5 years prior. I retired in 2013 due to too many symptoms. I’m about to turn 64 and walk with a cane. I take High dosage biotin, use the Fasting Mimicking diet almost every day. I’m gluten free and try to stretch/ exercise daily.

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2 months ago

Hi , I was diagnosed with ppms in 2018, told probably had for five years previously too. I have a strap for foot drop, left only and recently got a cane if I have a longer walk. My left side seems to have most difficulties, arm and leg. Headaches, neck pain and occasional spasms plus the frustrating fatigue. I am 57, working as a carer for the elderly and have two kids 12 and 15 plus a husband although I would say we are no longer a couple although still living in same house (not due to ms). I am trying to assist myself through exercise and diet, recently got notified I did not meet necessary requirements to be put on ocrevus, no active lesions. I have recently had blood tests and prescribed 40,000 vit D3 a week which I checked with GP as I have been advised by another mser on a forum that K2 mk7 could prevent adverse effects of high doses of vit D3. Brain fog does not help trying to consider all pros and cons. Hoping the fasting mimicking gets some positive results, would like to know more. I am trying to get my gut flora on the right track. I am new to shift as of tonight.

2 months ago

Similar timeline here….I was diagnosed with PPMS in 2013 having had symptoms for well over 5 years. I’m 63 and retired from my big full time job 3 years ago to get a better health / life balance by working part-time. I’ve been fully retired for a year now and am trying to keep as active, fit and healthy as I can. I too am not eligible for Ocrevus as there was no significant changes on my MRI.

2 months ago

@constance56 , @hubble , welcome to both of you. 😉

2 months ago

Welcome both. PPMS diagnosis in 2015.. keep on keeping pn

2 months ago

Hello @constance56 and others, I was diagnosed three years ago, and am slowly reducing hours of work to enhance quality of life. I think that’s possibly one advantage of being diagnosed in your fifties and over, in that you’re perhaps a bit further down the line in terms of financial responsibilities and can afford to adjust life a bit better. Take care all 🙂

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