I wanted to reach out and just start a conversation.
My story is that i was diagnosed last March after a number of years with various tests leading to March 10th confirming what i pretty much expected.
Symptoms started in 2002 with pins and needles in my left arm and hand which was considered as probable trapped nerves….being a typical bloke – things didnt get any worse or any better so i just got on with things. What i didnt know was MS had been noted in by GP as a possibility.
Over the next 15 years symptoms came and went – the one thst caused me the most pain – ms hug. Some symptoms(happy to share) came and decided to stay. Mainly arms and legs with numbness and pins & needles.
I feel lucky that my symptoms don’t stop me doing anything. I find my symptoms are more inconvenient than debilatating. I run and play football regularly.
Mood swings are something im aware of….though some may say im just a grumpy sod anyway 😊 so i work on being optimistic and positive. Sometimes just have to switch off though.
I’ve only told my other half – who has been at the various appointments with me over the last couple of years. She probably asks more questions than i do so having her support is great. Telling others is the thing i’m still ‘planning’. When to tell and who to tell is the thing i’m struggling with. I don’t want any drama.
I’ve been keeping a video blog recently which i’ll share some day and it might help others understand my perspective better.
I’ve been taking tecfidera for over two months now. No significant side effects. Flushing is the thing i get that passes. Dry mouth- so always have water near-by. Is it helping? Who knows! I am improving what i eat. More fruit and veg and less red meat. Taking vitamin D each day as it seems to be the thing to do 😊
So that is my story. If you want to get in touch i’ll be chuffed to hear from you.
Stay cool. 😎
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