@MavisDavies 

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MavisDavies

Hello & glad to be here for support

Hi I've been meaning to post for a while and knowing where to start but after a few conversations here I go. I'm 46 now but symptoms started a few years ago but I didn't realise what they could be, I'm currently undiagnosed and finding it all very hard and somewhat vulnerable. I had my 1st MRI in November 18 after a suspected TIA which showed an abnormality in the left temporal but another MRI a few days later did not show it. Symptoms continued so stroke team felt it was not likely to have been a TIA and more neurological. I've had all tests to rule out other possible causes from haematology and rheumatology to be told other than antiphospholipid antibodies they have came back negative and further MRI of brain and spine in August was clear accept for minor age related wear and tear in lower spine. If you read my symptoms you'd think I was crazy (I often question myself) but I know what I'm feeling is not normal. It's doesn't help having an obnoxious egotistical neurologist who has saw fit to label me a hypochondriac rather than listen and discuss my symptoms fully with me. I know deep down I don't want it to be MS especially as my hubby has parkinsons but the way I'm feeling I will honestly be relieved to just know so I can deal with it and be the best that I can to be able to care for him. Did anyone else feel this way alone and like some kind of fraud? Has anyone had clear MRIs only to later still be diagnosed, what do I do next I feel so intimidated and fobbed off by my neurologist.
@Timothy_Little

To Mavis David's it must be really hard for you to deal with a husband suffering from Parkinson's disease and what you are feeling in your mind is real but I am sure that the last thing he wants to have is Parkinson's disease however he does need as much support and help he can get it if you are finding it is all too much for you then don't be afraid to ask others for help . Remembering that we are all people first and everyone in this world counts diseased or not. Look for the true measure in a person by how they treat you and if you think it is all too much please post whenever.No one should ever have to feel alone in their struggles.

@MavisDavies

Thanks @timothy.little my husband was only diagnosed in March this year so it's all new on top of what's happening to me but thankfully we have an excellent parkinsons support worker who not only supports him but the whole family and it was this lady who suggested reaching out to MS support. We have good family support too but I do feel being here with others who have been were I am now or going through it at the same time will be extra support.