Hi I’ve been meaning to post for a while and knowing where to start but after a few conversations here I go. I’m 46 now but symptoms started a few years ago but I didn’t realise what they could be, I’m currently undiagnosed and finding it all very hard and somewhat vulnerable. I had my 1st MRI in November 18 after a suspected TIA which showed an abnormality in the left temporal but another MRI a few days later did not show it. Symptoms continued so stroke team felt it was not likely to have been a TIA and more neurological. I’ve had all tests to rule out other possible causes from haematology and rheumatology to be told other than antiphospholipid antibodies they have came back negative and further MRI of brain and spine in August was clear accept for minor age related wear and tear in lower spine. If you read my symptoms you’d think I was crazy (I often question myself) but I know what I’m feeling is not normal. It’s doesn’t help having an obnoxious egotistical neurologist who has saw fit to label me a hypochondriac rather than listen and discuss my symptoms fully with me. I know deep down I don’t want it to be MS especially as my hubby has parkinsons but the way I’m feeling I will honestly be relieved to just know so I can deal with it and be the best that I can to be able to care for him. Did anyone else feel this way alone and like some kind of fraud? Has anyone had clear MRIs only to later still be diagnosed, what do I do next I feel so intimidated and fobbed off by my neurologist.
Browse categories and add by clicking on them
You can remove current categories below by clicking the ‘x’.