@CitizenK 

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CitizenK

Drum Roll for Ocrevus continued...

So the last week and a bit has been pretty s***y by all accounts... Major instability issues along with renewed optic neuritis issues, making walking quite difficult, although "somewhat manageable" but I am stumbling an awful lot & walking drunk even though I've not yet had a drink..lol. Going for my 2nd infusion on the 3rd Jan, along with a dose of steroids so am hoping that may reverse my current symptoms "hopefully?" Wishing you all a great night in advance, whatever you get up to... Be well, God Bless & all the very best in 2020... Going out to the entire "Shift.MS family."
@Allinmyhead

How have you found the treatment? Have you had any side effects? My Neuro has mentioned starting me on Ocrevus, due to have MRI of brain and spine Friday and then discussing treatment further when he has results to see if any changes. I'm 14 months post diagnosis with no current symptoms. Happy New Year 🎉

@CitizenK

@allinmyhead, Hi & a Happy New Year to you too... So I had my first infusion at "Charing Cross Hospital" London, on the 18th December & I go in for my second, this Friday 3rd Jan. First few days after the infusion I was ok but then a week or so in I started having more pronounced & noticeable issues with my Optic Neuritis & Balance & I still have them to date, forcing me to have to enlarge text on my phone & laptop as it is near impossible to read & type otherwise. Walking has become a lot harder as I am stumbling & have a lot more instances of drop foot. I spoke to my MS nurse last week Friday & she instructed me to pay close attention & if anything serious is to happen then I should go to my local A&E... In a lot of cases "not all" some people can react to new treatments, especially when moving from one DMT to another, and I also hear that this is a sign that the drug is working & things sometimes get worse before they get better... I'm hoping that this Friday's infusion of steroids along with part two of my first Ocrevus infusion will help with my current symptoms... I think that for you, having an early diagnosis with no known symptoms as yet is a good thing & although some "myself included" did not" start with a DMT immediately after diagnosis, I think it wise to seriously consider it as your Neuro has suggested... Hindsight, as they say, is 20/20 & had I known then, what I know now I would have started a DMT earlier... The earlier the better in my view, simply to delay disease progression... But then you may have a different view? Like with me I initially wanted to do things naturally after researching & reading books "by Dr. Terry Wahls " and her book "The Wahls Protocol" also literature from Dr. Roy Laver Swank & his "Swank Diet. So to summerise... DMT's effect each individual differently but my research has shown that overall, success rates with Ocrevus are positive but it's still early to say as the drug is still in its infancy so we do not know what the long term effects will ultimately be but I'm hopeful "which is a good place to start from." Good luck & God Bless & know that you're in a good place here with the Shift.MS family and people will be only too happy to answer any queries/questions you may have... Be well.