Hi all, I would appreciate your opinion on something:
I was diagnosed around 2 years ago and have been on Copaxone since then. Doing ok-ish except for some minor things, and fatigue. (Much better than how it started which made me unable to see for a while)
Well, I just got my latest MRI results back and.. : / I have one new lesion. I found out yesterday and felt so sad I cried the whole morning.
My neuro said that this is ‘normal’, and that I shouldn’t switch to a different medication. I told her that I would very much prefer to switch to something more effective, especially since we saw new evidence of activity on MRI, but she said that this is impossible. She told me I could only switch to another first-line treatment (interferons/pills) if I really insisted, which she doesn’t recommend because of the time window of them taking to start working.
She told me that if I had more than one new lesions (maybe 3) then we could discuss about switching, but it would probably be again to a first-line dmt.
I want to ask your opinion/experience with this. Is it normal?? The only thing that I kept telling to myself all this time is ‘it’s ok even if there is progression, at least you will have options’. And now it seems that I don’t really!
When I asked her in which scenario I would switch to something more effective she said ‘only if it gets too active. Maybe next year you again get one new lesion, and I would again not advise you to switch. I never guaranteed that there will be no progress on the medication. We know that they don’t actually stop the illness.’
I would appreciate any opinions/advice on this so much! I feel a bit lost and without any options : (
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