@Cooper 

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Cooper

1st Ocrevus Treatment and electric shock

Firstly I had my first Ocrevus treatment today. It went beautifully. I felt very tired with the steroid injection etc but soon perked up. I have been tired all day, but not too bad at all. Jet lag probably catching up, 34 hours of flying in 4.5 days doesnt help. No side effects were experienced either. Very happy so far. I have been experiencing agonising electric shocks in my left arm, now more focused on the left hand. If I sleep and turn over its bites me. I have to sleep planking but then my neck is stiff and movement in the morning has to be undertaken very carefully to avoid the pain. It is when I reach out or extend or particular movements, but not head down associated with Hermittes. I had this last year before diagnosis and I went to see a physio. As it was both arms they thought it was posture. So I followed exercises given and opened up my desk etc at home instead of working at a laptop. They said a muscle connecting my top rib to my neck was the cause. I had it last year for 3 months, went on holiday and it went I questioned my MS doc today who said it was an MS symptom and there is no real way of getting rid of the pain, but it will go away, phew! It does limit what I will push myself to do a little but the Doc told me that the Ocrevus should stop it. When it pinches and shocks it is agonising, but only lasts a number of seconds until I move position to a 'safer' position. I then move various ways with my head and this seems to work to an extent (unless its.my own placebo!) Has anyone had similar nerve pain?? I just need this period to end so I can go back to the gym. It's all just temporary. It's not going to stop me, always think positive!!
@cameron

For the first few years after I was diagnosed I lived with the constant fear of waking up one morning paralysed. MS occupied much of every hour of every day. I've always had excellent hospital/GP care so I now wonder if I was just too fragile and shocked to absorb properly the advice and information that I was given. Sixteen years on, I'm fine. For what it's worth, this is what I now know to be true: 1) symptoms - even troubling and persistent ones - may well disappear or reduce, and there are meds for most things but you'll need to be pro-active in asking for help. 2) Current thinking is that exercise may have as potent an effect on your MS as a DMT. 3) The best way of channelling the MS-worry issue is to improve your general health: think exercise, diet, sleep, stress reduction. Finding and doing things that make you happy alongside getting fitter should keep you occupied! PM me if I can help with more info. xx

@Cooper

Thank you @Cameron for your reply. I must admit i have not been worried about MS although I should be of course. I am hoping the ocrevus will do as I am told and there will no longer be any thoughts until my 6 month top up. I agree about general health and well being but having an positive attitude I feel has helped me so far too. Thankyou for offer of support but.i feel I an okay, although it was very kind of you. All the best