#y - Shift.ms

@katieb

Hi, new to all this and lots of questions! Diagnosed in between Xmas and new year and still waiting for test results 😩 they think it could be ONS anyone else with this? I’m not getting answers from medics still no contact from neurology and my GP only knows I’ve been diagnosed because I told them! Feeling lost and overwhelmed 😢

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@Kathrynj

Thank you so much for the warm welcome.

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@khoracebrooks

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Do anyone else get tingling in the arms and fingers and somes locking and what do you do when it happens

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10

@Jamarm

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I have to go on Disability before the year is out it's a scary thing I don't want to lose what I have a family with 5 kids what is the time line from filing and first payment any feedback is greatly appreciated

First posted on the Shift.ms app

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@oldmanjenks

If you ever feel like giving up, remember there are always people out there.

Please please please speak up if you are going through a really tough time, there are always people who will listen!

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@BillySmith

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How long did it take you to get diagnosed with MS?

We’ve just launched Shift.ms polls! Take part in the first poll below👇 *Bonus points if you can leave a comment and let me know: are you happy with how long it took?

How long did it take you to get diagnosed with MS?

Total answers: 2440

376

@Tecore

Just joined hello everyone!! Just recently diagnosed with ms not sure what kind in may 2024. Really not sure how long I had it. Had vision problems what lead to the diagnosis. My vision is back to normal and I am doing pretty good. I am taking the infusion every 6 months. It’s been a little hard coping with this. But after a long time of being a mystery diagnosis person (14 years) I guess I am glad to finally have a name for it. Although my dr said the things I had going on don’t really go with Ms but I don’t really know!! I also have fibromyalgia since 2000.

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@gary1978

EditedLast reply

How bo you all cope with the burning and stinging sensation in you're feet and legs unfortunately for me ive tried everything that the consultants prescribed me and nothing has worked ive been dealing with this for 15 years and the intensity is getting stronger i am literally starting to struggle with it

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@shiftms-polls

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Poll 📊 Did your HCP mention progression at diagnosis?

Last month we reached out with an opinion check and asked you if healthcare professionals should discuss progression at diagnosis. While 17% of you said you’d prefer to be told later on, around 75% said yes, you would prefer to be told about progression at diagnosis. In the second of our progressi...

Are HCPs talking about progression at diagnosis?

Total answers: 168

28

@carrie1

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What does everyone do for work if you do work? How have your employers been since you were diagnosed? Mine have been awful. I would like to look for a new job, but I’m worried about telling new employers and risking not being able to get a new job at all.

First posted on the Shift.ms app

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