#this - Shift.ms

this .

“ What if . . . Laziness is a habit of thinking about the cost of things, or the effort. Instead of thinking about the payoff? ” ~ Scott Adams

First posted on the Shift.ms app

@ShawtyL54

Last reply

Hi everyone, I hope you all doing okay & staying strong. I have alot going on & I feel like crap. I been stressing but Lord knows I try not to because it's not good for my health. My oldest son was in a bad car wreck on Ma 16, 2026 & it took a toll on me when I went to the hospital & seen him with that breathing tube in his mouth. Hearing the doctor saying he can't breath on his own devastated me. God heard my prayers & gave my son another chance. He showed him grace & mercy...my son had to have surgery/ in his hip 2 plates & 12 screws. He's going through Rehab Therapy now. I stayed at the hospital with him for bout 14 days & never left his side. The hospital then transported him to a inpatient Rehab Therapy Facility I stayed that day & went hope to rest. I having been feeling the best. I need to go see my Neurologist but my car a/c went out & I can't stand to be in the heat very long. It takes 1hr. 10 min. to my Neurologist. It's sad but I don't have anyone to take me. My oldest son towed out his car & my baby son drive trucks over the road/ he drive his car to Atlanta truck spot & leave it there while he work. I'm concerned & honestly worried about my health for 1 my vision is blurry going in & out/ the pain in my right eye is excruciating it was like that before I think it's optic neuritis. I think I have another UTI, and my memory done got worser, and my whole body especially my legs are aching so bad. It sucks having MS & you don't have a support system or anyone to help me when I'm down & out. I just pray God hears my prayers...Still I'm there for my mom with dementia, my son because he still needs my help...but I look around & nobody has me. One of my sister's have cancer & still I go by & check on her & call her but hopefully she will be fine she done with chemo, had surgery, and next step radiation. I tell God I see why you allowed me to go through the things I went through in life...even though I'm going through I'm still fighting & staying strong. If, nobody else don't got me I got me & I know God got me. He didn't bring me this far to leave me. I'm just going to stand still and wait on God like always...he might not come when I want but he's a on time God. He amazes me everytime!🙏🏿❤️🙌🏾

First posted on the Shift.ms app

6

@Shadwell

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Overdid it last week and had an elevated heart issue but also had my ocrevus infusion, since I am rubbish, shaking and cannot walk far, my existing symptoms are elevated, has anyone else experienced this

Swansea, United Kingdom

First posted on the Shift.ms app

2

@JeanneH66

EditedLast reply

Hi, I'm fairly new to the community. I was diagnosed with MS in 2001. I've tried several "old school" treatments such as Copaxone, Betaseron and Rebif. I went off all meds around 2015 because I got tired of feeling the flu like symptoms. I suffered a pretty bad exacerbation in 2016 where I was hospitalized for 7 days while I completed steroid infusions. My MRI at that time showed new scars, one of which was on my cervical spine. The steroids did me well for several years. I didn't have any new symptoms until 2023. I've had several MRI's since, all of which show no new scars. My neurologist has refused to treat me with steroids because I don't have new scars. I told him I was open to infusion therapy and we decided on Rituximab. I will be starting my first infusion on Monday, July 20th. Does anyone have experience with this particular medication? If so, has it improved your symptoms and what can I expect as far as any side effects? Thank you in advance for any feedback.😊

First posted on the Shift.ms app

7

Deleted

@port

EditedLast reply

I am new to this forum and welcome any advice from people about how to help family understand. Difficult here with my adult child and feeling misunderstood and not able to help him through suffering but also feel like he may think I’m faking or drama queen. I am also concerned about how He is having to live with Ms too. It’s really hard. I’m usually a good communicator but we’re tangled up. I welcome any ideas people might share. Thank you.

First posted on the Shift.ms app

10

@time after time

Last reply

I’m 73 years old. It has taken two years of testing and various other progressions to get diagnosed with MS. I now face more evaluation this coming week and am exhausted just to think of explaining my symptoms and frustration. Words of wisdom?

First posted on the Shift.ms app

1

@kala21

EditedLast reply

I’m experiencing neuropathic nerve pain in my legs and feet 😔 Its so mentally draining I’m finding it hard to cope with because I got to stay active to keep my mind sane and because I can’t do that right now I’m not coping at all. I’m having bad thoughts and I don’t normally get this low or depressed. How do you all manage this?

Aberdare, United Kingdom

First posted on the Shift.ms app

9

@AndrewK

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Which warriors on this platform are from Pennsylvania?

First posted on the Shift.ms app

4

@Simpson021783

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Well this has been a monumental let down

Finding community on this site has been a constant uphill battle. No conversation seems to last, and unfortunately no community either. Not for me at least. And especially when I'm stuck in the middle of Nowhere, NC. Hopefully something gives here soon and I get to make a major change in my life- bu...

Louisburg, United States

First posted on the Shift.ms app

27

@Milojka

Last reply

So annoyed with this...

I was telling someone about my MS diagnosis, saying that it has been lifechanging for me. Briefly listed up some symptoms eg weakness in legs, poor balance, fatigue. Her comment: I have exactly the same, it comes with menopause and ageing, we all have to go through it. Anyone recognises this? And w...

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