#this - Shift.ms

@PriyaC

Edited

I have read that approximately 3-10% of people with MS are oligoclonal band negative ( from the lumbar puncture/spinal fluid results). With my own lumbar puncture next week, it would be really interesting to know how many people that have a firm diagnosis of MS were oligoclonal band negative and positive and whether this has affected symptoms to date/new lesions etc. If you were oligoclonal band negative, how were you diagnosed? MRI findings and symptoms? Or other tests? I think my neurologist mentioned that if I am oligoclonal band negative, they may consider doing something called a CTPET scan…

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@connor1812

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Are there any irish people on this app?

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@prettytragedyy

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I know this may seem off topic

So since my boyfriend told his mom about my ms. She told him how I am sick and he should basically leave me after 8 years of relationship.

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23

@lailai93

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I don’t know if this ms or pms

I’ve had backache, diarrhoea, constipation, cramps. My TOM hasn’t shown but no other symptoms I do also have pcos. I’m not sure if this a ms symptoms or lady issues. Sorry about the tmi just want answers as it’s so uncomfortable

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@Stacyrigg99

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Ok insurance denied OCREVUS but they approved kesimpta. Problem is I don’t have the extra $2800 a month that it’s gonna cost me. Anybody know of a way to get help with the cost of meds!!! This is ridiculous!! I mean that’s $33,000 a year!!.

Appomattox, United States

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36

@mrym4444

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This winter season pain kills me

I got my headache in winters all the time. How to stop it?

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5

@Tia

Just found:Recent research has uncovered a shocking connection between multiple sclerosis (MS) and parasitic infections. Autopsy studies of MS patients revealed that every single individual who died from the disease had parasites within their central nervous system. This has led experts to question the role that these parasites might play in triggering autoimmune diseases like MS.While MS is traditionally thought of as an autoimmune disorder, these findings suggest that other factors, such as infections or parasitic infestations, could contribute to the development and progression of the disease. Parasitic worms in the brain have been shown to interfere with the nervous system, causing symptoms that resemble those of MS. This discovery opens the door to further investigation into the relationship between parasites and neurological diseases.As we continue to explore the causes of MS and other autoimmune disorders, it’s essential to look at all potential contributing factors. Addressing parasitic infections in early stages could offer a new pathway for treatment and prevention. This emerging research highlights the importance of considering all aspects of health, not just the symptoms. 🧠⚠️

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@AdamSchiffer

Dizzy today, gentlemen. I had a breakfast meeting this morning with a group of friends called ROMEO. That stands for Retired Old Men Eating Out. It was pleasant conversation about… Well, essentially about nothing. We vaguely discussed how we were feeling, how our wives or partners were doing and plans for our future. Some of us are afraid to actually make any plans that might cost money because their health is not so great. I am not like that! I make plans to keep myself happy with something to look forward to! I’m excited about two upcoming events! One is going with my wife (a woman I still call my beautiful bride after 30 years of marriage, to New York City to see my favorite band of all time in concert one last time. The two surviving original members of Rush are both 75 years old now and are doing one last tour. I’m seeing their next to last performance ever, as the next show after NYC is in their home town of Toronto. Then, a couple weeks after that, I’m going with that same amazing wife I mentioned on a cruise along the coast of Italy. We have the opportunity to attend a Sunday mass at The Vatican and hear a sermon by the new Pope. Now, my beautiful bride and I are both Jewish, but her best friend and her new husband (her second marriage is a huge upgrade from her first one! Are both catholic. They are both excited for the cruise but the opportunity to actually attend a Sunday mass in Vatican City and hear a sermon delivered by the leader of Catholism world wide is a once in a lifetime opportunity, even for me as a Jewish man. I’m excited to take our friends on their first cruise (its the first time leaving Indiana for the guy we are taking with us, and he is very excited and has been quite appreciative..

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@Keith71

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I have just been told by my specialist that they are going to try me on something called duloxetine has anyone had this medication if so what do people think.

Wirral, United Kingdom

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9

@PriyaC

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I am due to undergo a lumbar puncture and am quite nervous about the procedure. I have been told that I most likely have MS but this is to confirm the diagnosis to decide on treatment. Any advice re: what to expect/ side effects?

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