Looking for
something specific?

Smoldering multiple sclerosis (MS) is a chronic process that occurs in the brain and spinal cord of people with MS, even during remission: Explanation Smoldering MS is a slow, ongoing process of damage that occurs when areas of the brain remain active, causing destruction. This process is similar t...

I had my annual check up with my consultant 2 hours ago at RUH Bath. Here is a brain dump of our discussion, while it's fresh in my mind, in case it helps anyone else with RRMS/SPMS who takes a T Cell based DMD: - Lymp count was 1.3 and right where they want it. - The very slow annual increase in...

I am so disheartened by the interactions I’ve had on this app, in leas than 24 hrs. So far it has been a slew of judgment and mansplaining about MS. Like most things in life, I don’t really care how other people approach their health, as long as I’m not being pressured to go along with it. My orig...

After all the years of different MS therapy drugs, the pills, the shots, the infusions, the pulse steroids what not finally got a neurologist who strictly deals with multiple sclerosis. He did research on maven clad, and I was a test subject, and I got put on maven clad, and I am so glad that he pu...

I'm looking for some things to do with my life that may make a difference to my persistent symptoms. I keep seeing the same thing posted on here quoting the word "evidence" and then citing YouTube. YouTube, by it's very nature is not a trustworthy source. Do any of you have some peer reviewed, medi...

Aside from not suffering from this dumbass illness, what drives you? My 3 young ones and the FACT that we can heal, pushes me. That and I'm petty. My neuro telling me to get used to existing in a wheelchair incited my research. My kid's don't deserve to have me be like this. I was always dad the ...

Is anyone else using this? There is a lot of research out there about how red and infrared light therapy can have positive effects on a range of different biomarkers. I am using a small red light panel for about ten minutes a day alternating between my chest and back each day. Whilst it is a nice ...

I was wondering if anyone here has started on HRT in their mid 40s and found it helped with MS symptoms at all, along with other things (please feel free to share 'other things' if you are comfortable as I have read HRT can help with issues such as loss of libido and with pain and dryness you-know-w...

I’m Kate Green conducting a research project as part of my PhD at the University of Central Lancashire and looking at your experiences of living with MS and if this has impacted your relationship with fashion. As part of this research, I am conducting a questionnaire. This project has been approved ...

Anyone being bombarded with the benefits of NMN for MS? I’m really confused, as some studies show that taking this to produce more NAD has a positive effect on myelin repair and protection and other studies suggest it can trigger axon degeneration. I had been taking it (bit silly as research and cli...