Shift.ms

11 Aug 2025 17:36 EditedLast reply 11 Aug 2025 22:27

RRMS SPMS Treatments Ranked by How Well They Stop Relapses That Cause Damage to Your Brain, Spinal Cord & Optic Nerves

Relapses in MS are attacks where your immune system wrongly attacks important nerves inside your central nervous system (CNS) that means your brain, spinal cord, and the nerves connecting your eyes to your brain. These attacks cause damage that can lead to disability. The right treatments help stop...

First posted on the Shift.ms app

@Jimmy369VT

29 Jul 2025 21:10

Since I have moved to Florida from Vermont, I have been learning a lot more about MS as it’s whole until I actually found a neurologist that was actually specializing in MS. I did not know that not only is it a nervous system problem, but it is also autoimmune and I did not know That extreme cold and extreme heat can actually make flareups worse and if it is hereditary, it can also make the MS come out quicker. I did not know that I did 13 years making snow at a ski resort in Vermont and then when I moved to Florida, I did Five years underground construction and I always wondered why I felt funny and triple digit heat, but it wasn’t heat stroke, and there were days where if it got below zero or into the negative temperatures, my body would tighten up intense up like I was getting squished by a bow constrictor. I went years until my primary care physician told me to go see a neurologist, and then he gave me the evaluation told me to take an MRI. They did not find anything in my spine, but my brain said a lot is what the neurologist said, and then he started poking and stab in the bottom of my feet with stuff and doing a tuning fork all over my body and when I told him I couldn’t feel it in certain spots and then in other spots, I could just slightly feel it or it just felt like a ant crawling on my leg or on the top of my foot. I’ve never seen anybody that evaluated me for anything get so concerned, looking on their face and then now he wants me to do a spinal tap, which I am doing August 8. I already know it’s not going to be like the movies or television shows where it’s gonna be excruciating painful off the back. It’s going to be the next day. I’m going to have to recuperate. I have several family members with MS as well so they are kind enough to give me peace of mind explaining to me how they felt after all the stuff they had to do and I am pretty much doing the same thing and my neurologist did put me on something. I can’t remember the name of it or pronounce it but my flareup weren’t so bad, but then my colitis started getting worse so he took me off it and now as long as I just stick to easy tasks, I’m not so bad but it hurts sometimes to move. I can relate to how my mom felt towards the end now, she said she was in so much pain, but because her mind was slipping back into a childish state of mind. She had good spirits about her. My dad just turned into a zombie and he said that he only focused on walls or focused on watching a television show because it was the only way he could control the pain. I meditate to help with my pain and I listen to the doctors and follow my prescription regiment, but there are still days where it feels like I got hit by a truck and I just stood up out of bed. The scary days are when I can’t get out of bed altogether. I do not know if anybody else has ever felt like this, but there are days where I wouldn’t wish this on my worst enemy and to get places of business to understand what you’re going through and to explain to them OK if you have me do these tasks then don’t expect me to come to work tomorrow because I won’t be able to move. I have been rejected so many times my wife just finally decided to fill out for disability and now between my attorneys and Social Security I have my doctors not only giving me tests and labs for their peace of mind but now I have them filling out papers and forms for my attorneys and Social Security and it’s been like that for almost 3 years now every time I think we’re getting close I have more papers in the mail for my doctors to fill out or my neurologist there are days where I just wanna give up but then I think about what it would do to my family and then I sit with my son and play video gamesuntil the feeling goes away, and I snapped back into my normal self

First posted on the Shift.ms app

@ErikaC

24 Jul 2025 12:20Last reply 24 Jul 2025 12:46

Dancing with My Shadow

  Multiple sclerosis is... waking up one day walking with ease, and the next, your legs refuse to follow. It’s going to bed in pain after waking with hope. It’s living in a body that no longer always listens and learning to love it anyway. It’s a battle the mirror doesn’t show, but your body feels i...

First posted on the Shift.ms app

@ballstoms

11 Jul 2025 12:05

DOES THIS POEM CONNECT WITH HOW YOU FEEL?

I always try to look for the positives when it comes to MS, but occasionally I slip into a dark place, like when I wrote this poem that was originally published on the MS Society website. I was worried about my steady deterioration and thought I may be progressing from RRMS to Secondary (my neuro di...

Contin, United Kingdom

@ballstoms

6 Jul 2025 15:17

MS Conscript

My first post, so let me introduce myself, in case it helps someone who’s closer to the beginning of this difficult journey. I’ve had RRMS for over 20 years and been on DMTs for around 15. I’m still walking and working, but get tired easily, and I still drive, just with a blue badge in the car. So,...

Wakefield, United Kingdom

@BearyBunny

2 Jul 2025 21:36Last reply 3 Jul 2025 03:17

just.. a lot.

I was diagnosed March 31st, 2025, And I don't know how to get my family to realize I might never be better... I understand that it's only been a few months, the first year of diagnosis is the first, and this is hard on them too. I am blessed to have a family who can assist me and help provide for ...

Newburgh, United States

Unpublished

@Susan23

19 Jun 2025 16:04Last reply 19 Jun 2025 21:47

How I Reversed My MS Symptoms with Herbal Treatment”

I’ve been living with Multiple Sclerosis (MS) for quite some time, and for years, I struggled to find lasting relief or stability. Medications helped manage some symptoms, but flare ups, fatigue, and neurological discomfort would always return sometimes worse than before. It left me feeling drained,...

St James's, United Kingdom

Unpublished

@matin

19 Jun 2025 13:03Last reply 19 Jun 2025 13:56

How I Managed My MS Symptoms with Herbal Medicine"

I’ve been living with Multiple Sclerosis (MS) for quite some time, and for years, I struggled to find lasting relief or stability. Medications helped manage some symptoms, but flare-ups, fatigue, and neurological discomfort would always return sometimes worse than before. It left me feeling drained,...

St James's, United Kingdom

@xlKiritolx

8 Jun 2025 13:08 EditedLast reply 9 Jun 2025 00:10

Over heating

Even when the weather hasn't even been hot my body can't seem to regulate the heat and find my self sweating buckets, had plenty of fiends point this out im sweating but its mostly my face but Im just wondering if anyone else is going trough this.

First posted on the Shift.ms app

@AlexanderM

7 Jun 2025 22:22 EditedLast reply 8 Jun 2025 17:45

Does it ever get better?(mini rant)

I’ve recently been diagnosed with RRMS. It’s been a rough couple of months that led to my diagnosis and it has taken every ounce in me and more to just hold it together and not let my life fall apart. According to my neuro I’ve had like three relapses in less than three months and have a lot of inf...

First posted on the Shift.ms app

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