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14 Jun 2025 22:51Last reply 15 Jun 2025 00:37

Nystagmus , has anyone gottten this with MS ? It happened to me I’ve had it for 3 weeks now .

First posted on the Shift.ms app

5

@NadineBeck

12 Jun 2025 15:36Last reply 14 Jun 2025 13:16

Is this optic neuritis?

I don't know if I'm over reacting/panicking, but Tuesday i had a grumbling headache, that twice gave me sharp pain to the right side of my head, grumbling very mild headache since. Yesterday I felt like there was 'jelly' in my right eye making sight a little off, but not awful, resolving after a f...

First posted on the Shift.ms app

13

@laciw

13 Jun 2025 00:52Last reply 14 Jun 2025 04:34

I know it's time to quit working and focus on my health, however, no one understands and thinks I'm giving up. I dont feel as though that I have a good support from my partner or family. How do I do this alone?

First posted on the Shift.ms app

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@paddymac999

13 Jun 2025 18:54 EditedLast reply 13 Jun 2025 21:53

Hi guys, i am new on this. I've been taking fampyra for two weeks now. At first I seen sme positive effects,but for the last coupleof days my mobilityis not great. Im wondering how long does it take for it to really work. I've got a months experimental course. Will I have to take the whole four week course before I find out for sure

First posted on the Shift.ms app

5

@SacralSaela

30 Nov 2024 21:36Last reply 12 Jun 2025 22:34

Really disappointed with this platform and it’s been one day

I am so disheartened by the interactions I’ve had on this app, in leas than 24 hrs. So far it has been a slew of judgment and mansplaining about MS. Like most things in life, I don’t really care how other people approach their health, as long as I’m not being pressured to go along with it. My orig...

First posted on the Shift.ms app

42

@Robbie91

12 Jun 2025 01:01Last reply 12 Jun 2025 03:43

Hello my name is Robert I’m new to this app I had MS for about 8 years

First posted on the Shift.ms app

9

@Biteme71

11 Jun 2025 17:34Last reply 12 Jun 2025 03:38

Ramification of torticollis nonsense and what happens when you have side effects with botox . After my latest round of Botox that I have every 3 months to deal with the torticollis new nonsense I now am choking every time I try to swallow something or God forbid eat something. This is not the diet plan I was looking for 🤦 I called the MS center for some advice on swallowing or rather navigating the new nonsense and then cold a different neurologist to try to get a second opinion. Of course I can't be seen until freaking August. No I don't want to go to the emergency room it's not an emergency simply going to the emergency room cost more money than my God damn mortgage. Luckily if I eat small bites of tiny things I'm able to choke down some food and cream of wheat works but damn it not cool. On the other hand my husband made a really cool attachment to a scooter we have so that we can hook my Walker onto it so that when we go on vacation I can take the walker with me at the beach when we drive around. It's the little things I'm such a lucky woman to have such a fabulous husband 🤩 and yes attitude is everything do what you can how you can when you can and everything else can f*** off 🤣

First posted on the Shift.ms app

3

@christypogue

11 Jun 2025 03:09Last reply 11 Jun 2025 17:20

Im looking for advice? I will be 57 this month and I met with neurology nurse practitioner today. I have spinal stuff going on that could explain my numbness in my arms and the tingling but what led me to them is my frequent falling. I've fallen 3 times in 8 months. Once in the shower. Second time at a childcare center because I work with behavioral children and I fell broke my wrist and I thought I did something to my neck, bit through my lip. Then several weeks ago I just face planted in the garage and broke my nose. The mri did show lesions but I'm pretty old to be diagnosed. Im not sure I want to be diagnosed at this age? Should I even pursue it? Im so confused? Im not one to stick my head in the ground but I also don't want to sit around and get worse. I have other symptoms and I've fallen many times before here and there and just chalked it up to me being clumsy. I could use some advice?

First posted on the Shift.ms app

14

@stavy917

10 Jun 2025 19:29Last reply 11 Jun 2025 15:22

Hi just got diagnosed yesterday and was given treatment options I went for the dimethyl fumarate anybody know if it’s any good as I’m completely new to all this and a little worried 🫤

First posted on the Shift.ms app

18

@Laquita23

10 Jun 2025 00:27Last reply 10 Jun 2025 20:57

Anyone else feels like this ?

I been diagnose with ms this year. I feel alone, I feel like nobody understands what I go through on a daily basis. I planned my day to get things done around the house and I can never get it done and it gets frustrating. I am tired of crying and feeling bad for myself.

First posted on the Shift.ms app

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