#this - Shift.ms

this .

“ What if . . . Laziness is a habit of thinking about the cost of things, or the effort. Instead of thinking about the payoff? ” ~ Scott Adams

First posted on the Shift.ms app

@Flores_Doramis_Jr_

Last reply

My doctor told me that occrevus is changing from an infusion to a injection in stomach anybody else heard of this

First posted on the Shift.ms app

7

@calm_life521

Last reply

I'm new here, trying to start making those connections with MSers so I can get ahead of having an idea what this whole MS thing is about and how I can of course deal with, the changes, adjustments, treatment etc. My grandmother had MS before she passed and seeing myself today, I kind of think I just might have MS, not completely sure yet because what I think might be the symptoms could just be something normal I'm dealing with at the time, it goes away and sometimes I get to feel those twitches, fatigue, brain fog and sleepless nights a few times. Open to learning about people who have been on this journey and how their everyday living is handled it…. Look forward to meeting great minds and kind people

First posted on the Shift.ms app

7

@fayerene

EditedLast reply

I have issue with the sensation of a lump in my throat, constantly trying to clear my throat. Anyone have this?

First posted on the Shift.ms app

3

@nkinley

Last reply

I was diagnosed with RRMS over 10 years ago, but only recently started experiencing what seem to be flares and relapses. I’m meeting with a neuroimmunologist tomorrow and would appreciate hearing from others who have been through something similar.Was anyone initially misdiagnosed or told their MRI findings were unclear? My MRI only shows a few white matter lesions/scars, and I also have a history of Traumatic Brain Injury, which makes it difficult to know which symptoms are coming from MS versus TBI.Some of the symptoms I’m experiencing include:• Blurry vision, double vision, impaired color vision, and eye pain• Muscle weakness, stiffness, balance problems, dizziness, tremors, and difficulty walking• Numbness, tingling, heat intolerance, and possible Lhermitte’s sign• Brain fog, memory issues, concentration difficulties, depression, and mood changes• Bladder urgency and bowel issuesFor those with RRMS:Were you ever misdiagnosed before receiving a definitive MS diagnosis?Did your MRI show only a few lesions initially?What questions do you wish you had asked your neurologist early on?Which treatments have helped you most with fatigue, brain fog, mobility issues, vision problems, or relapses?Have any affordable medications or infusion therapies worked well with insurance coverage?Thank you for sharing your experiences and insights. I’m still learning how to navigate this journey and appreciate any advice.Questions I’d ask your neurologist tomorrowDo I meet the current diagnostic criteria for RRMS, or is further testing needed?Could any of my symptoms be related to my TBI, migraines, vascular changes, or another neurological condition rather than MS?Do my MRI findings show active inflammation, old lesions, or evidence of progression?Should I have MRI scans of my cervical and thoracic spine if they haven’t been done recently?Would a spinal tap (lumbar puncture) or additional testing help confirm the diagnosis?How can we tell whether what I’m experienced recently are true relapses versus symptom fluctuations?Am I a candidate for a disease-modifying therapy (DMT), and if so, which one do you recommend and why?What are the risks, benefits, and expected effectiveness of oral medications versus infusion therapies?What can be done specifically for fatigue, brain fog, pain, bladder issues, vision symptoms, and mobility problems?Given my family history, TBI history, and concern about possible CADASIL, are there additional tests you recommend?Common MS Treatments to Ask AboutDisease-modifying therapies (to reduce future relapses and new lesions) often include:Oral medicationsTecfideraVumerityAubagioMavencladInfusion therapiesOcrevusBriumviTysabriKesimpta (monthly self-injection rather than infusion)Many insurance plans cover these, and manufacturers often have copay assistance programs. Your neurologist’s office typically has staff who help obtain prior authorizations and financial assistance.One thing I’d specifically tell the neuroimmunologistBring up:Your history of MS diagnosis 10+ years agoRecent worsening symptomsHistory of TBI and cerebral contusionCognitive changes and memory issuesVision symptomsFamily history of stroke/CADASIL concernsAny heat intolerance and bladder symptomsThose details may help them determine whether there is one diagnosis explaining everything or whether multiple conditions are contributing to your symptoms.I’ll hoping tomorrow’s appointment gives me some clear answers and a concrete treatment plan. A neuroimmunologist is exactly the kind of specialist who can help sort through complicated situations like MS and my other neurological conditions.

First posted on the Shift.ms app

4

@AdiLaw

EditedLast reply

What ice cold 🧊 treat should be eaten during this hot weather? I have a sweet tooth but at the same time I'm looking for healthy treats with natural sweetness.

I don't want to trigger a type 2 diabetes side effect. Google says: High sugar consumption 🍦🥤🧋🧃🧉can worsen multiple sclerosis (MS) symptoms and accelerate disease progression. Diets high in refined sugars promote systemic inflammation, trigger severe energy crashes that exacerbate MS-related fa...

First posted on the Shift.ms app

71

@jreyes

Edited