#als - Shift.ms

@PoppyJo

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Cladribine/Mavenclad Year 1. I took my first week or Y1 last week. I don't feel sick or have a headache today but I am absolutely exhausted. My bones feel tired and I'm moving around in slow motion. Did anyone experience this in the week after your first round? I'm working from home but it is taking a herculean strength of mind. I've had interferons and dopamine years ago, azathiapron for 8 years and then 4 months of Tysabri (until I had an allergic reaction). All this to say, this isnt my first treatment experience but this one seems to have wiped me out. Is it just me or are there any other kindred spirits out there? I'd be really grateful for any shared experience and also experience of managing work through treatment weeks.

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@KevinPlantz

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Random crying? I was introducing my young cousins to the 80s movie, Monster Squad. I ended up having tears roll down and I felt… weird I guess? Crying while watching an 80s horror classic. Is that normal for anyone else? I also woke up a couple of days ago with Foot Drop.. conected in any way? TIA.

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2

@Adamski

Edited

Hi with the poll around care partner, there is no option to leave a comment like other poles. I do not have a 'care parrner' but can't put that down as not an option. Also personally i'm happy caring 100% for myself. I guess I can rely on me.There you go my answer on the poll 😂☺️💙

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@Bart73

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Hi! Hope everyone is well. April 8th, 2025 I was diagnosed with Afib. My last heart check up had been 2 or 3 years prior with no mention of Afib. In January of 2024 I was diagnosed with PPMS and had my first infusion of Ocrevus. My question to any of you on Ocrevus infusions is have any of you also developed Afib?

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Deleted

@LadyButterfly

Any MSers also having ADHD?

My Neurologist requested Cognitive Testing of me where I was then diagnosed with ADHD. I honestly believe I’ve had this my whole life. I’m being hard on myself regarding this diagnosis. I’m slower at processing speed. I’ve noticed my attention span is short and I can get overstimulated. Soon I will ...

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@LadyButterfly

Any MSers also having ADHD?

My Neurologist requested Cognitive Testing of me where I was then diagnosed with ADHD. I honestly believe I’ve had this my whole life. I’m being hard on myself regarding this diagnosis. I’m slower at processing speed. I’ve noticed my attention span is short and I can get overstimulated. Soon I will ...

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@LisaG

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Hi there, my name is Lisa, and I live in Reno. Nevada. I'm 54 years old, and I was diagnosed when I was 40, my worst symptom is my vision, which is really poor. I can't read a book or drive a car. I also have pretty extreme incontinence. Both urinary and fecal i also have some cognitive issues. And I walk with a cane. I feel really lucky because I don't have numbness. Tingling, spasticity, pain.

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4

@Tia

My daughter is on a gluten free diet , no red meat, no processed foods, no dairy, no wheat or soy, no sugar. She exercise and do yoga , she is on vitamins and try to be stress free also a university student… any one has any other suggestions? About natural remedies? Will appreciate it thx 🙏

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@Babyeeyore

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I have been diagnosed since 2015 with RRMS. I also had a stroke at the same time. Lately I've been feeling really weak. Does anyone else feel really weak? I don't have a neurologist because there aren't any available where I live, unless I pay almost $300. Does anyone else have a problem finding a neurologist?

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2

@ThatsSoDat

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Anyone who has Ms is also deaf?

I’ve had Ms for 20+ years and only met one deaf person with it also. I was curious if anyone is also deaf because I know some of my symptoms sounds very strange even to neurologist such as feeling “banging or yelling” in my head when I cannot hear? When I sign sometimes; it comes out way wrong tha...

First posted on the Shift.ms app

1

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