#als - Shift.ms

@HappyLady42

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New Here : Hello all , I’m Miss Mary . I been diagnosed since 2011 , it’s been rough , but I’m making it. I work out everyday for an hour to keep me grounded I also implemented Nutrition meals . I start with slim fast shake with an apple and I have berries for lunch with dinner I have glazed salmon with fresh lemon to end meal

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2

@soko

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I took my second loading dose of Kesimpta and the injection never clicked and went on very fast. Also bleeding and it hurt. Now a bruise. Not sure of some of med leaked out. I feel like the injector pen didn’t work the same as the first one. Has this happened to anyone else? Thanks.

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2

@livg

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Did anyone else get Marburg MS also known as fulfilment subtype MS? It is a aggressive subtype of RRMS and it’s very rare. I have never met anyone else that has had it!

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2

@kellihr

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I was recently diagnosed with PPMS and also have type 1 diabetes. Just wondering how MS affects my diabetes?

Point Pleasant, United States

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3

@PoppyJo

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Cladribine/Mavenclad Year 1. I took my first week or Y1 last week. I don't feel sick or have a headache today but I am absolutely exhausted. My bones feel tired and I'm moving around in slow motion. Did anyone experience this in the week after your first round? I'm working from home but it is taking a herculean strength of mind. I've had interferons and dopamine years ago, azathiapron for 8 years and then 4 months of Tysabri (until I had an allergic reaction). All this to say, this isnt my first treatment experience but this one seems to have wiped me out. Is it just me or are there any other kindred spirits out there? I'd be really grateful for any shared experience and also experience of managing work through treatment weeks.

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3

@KevinPlantz

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Random crying? I was introducing my young cousins to the 80s movie, Monster Squad. I ended up having tears roll down and I felt… weird I guess? Crying while watching an 80s horror classic. Is that normal for anyone else? I also woke up a couple of days ago with Foot Drop.. conected in any way? TIA.

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2

@Adamski

Edited

Hi with the poll around care partner, there is no option to leave a comment like other poles. I do not have a 'care parrner' but can't put that down as not an option. Also personally i'm happy caring 100% for myself. I guess I can rely on me.There you go my answer on the poll 😂☺️💙

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@Bart73

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Hi! Hope everyone is well. April 8th, 2025 I was diagnosed with Afib. My last heart check up had been 2 or 3 years prior with no mention of Afib. In January of 2024 I was diagnosed with PPMS and had my first infusion of Ocrevus. My question to any of you on Ocrevus infusions is have any of you also developed Afib?

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Deleted

@LadyButterfly

Any MSers also having ADHD?

My Neurologist requested Cognitive Testing of me where I was then diagnosed with ADHD. I honestly believe I’ve had this my whole life. I’m being hard on myself regarding this diagnosis. I’m slower at processing speed. I’ve noticed my attention span is short and I can get overstimulated. Soon I will ...

First posted on the Shift.ms app

Deleted

@LadyButterfly

Any MSers also having ADHD?

My Neurologist requested Cognitive Testing of me where I was then diagnosed with ADHD. I honestly believe I’ve had this my whole life. I’m being hard on myself regarding this diagnosis. I’m slower at processing speed. I’ve noticed my attention span is short and I can get overstimulated. Soon I will ...

First posted on the Shift.ms app

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