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Overdid it last week and had an elevated heart issue but also had my ocrevus infusion, since I am rubbish, shaking and cannot walk far, my existing symptoms are elevated, has anyone else experienced this

Swansea, United Kingdom

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I am new to this forum and welcome any advice from people about how to help family understand. Difficult here with my adult child and feeling misunderstood and not able to help him through suffering but also feel like he may think I’m faking or drama queen. I am also concerned about how He is having to live with Ms too. It’s really hard. I’m usually a good communicator but we’re tangled up. I welcome any ideas people might share. Thank you.

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I was diagnosed with RRMS over 10 years ago, but only recently started experiencing what seem to be flares and relapses. I’m meeting with a neuroimmunologist tomorrow and would appreciate hearing from others who have been through something similar.Was anyone initially misdiagnosed or told their MRI findings were unclear? My MRI only shows a few white matter lesions/scars, and I also have a history of Traumatic Brain Injury, which makes it difficult to know which symptoms are coming from MS versus TBI.Some of the symptoms I’m experiencing include:• Blurry vision, double vision, impaired color vision, and eye pain• Muscle weakness, stiffness, balance problems, dizziness, tremors, and difficulty walking• Numbness, tingling, heat intolerance, and possible Lhermitte’s sign• Brain fog, memory issues, concentration difficulties, depression, and mood changes• Bladder urgency and bowel issuesFor those with RRMS:Were you ever misdiagnosed before receiving a definitive MS diagnosis?Did your MRI show only a few lesions initially?What questions do you wish you had asked your neurologist early on?Which treatments have helped you most with fatigue, brain fog, mobility issues, vision problems, or relapses?Have any affordable medications or infusion therapies worked well with insurance coverage?Thank you for sharing your experiences and insights. I’m still learning how to navigate this journey and appreciate any advice.Questions I’d ask your neurologist tomorrowDo I meet the current diagnostic criteria for RRMS, or is further testing needed?Could any of my symptoms be related to my TBI, migraines, vascular changes, or another neurological condition rather than MS?Do my MRI findings show active inflammation, old lesions, or evidence of progression?Should I have MRI scans of my cervical and thoracic spine if they haven’t been done recently?Would a spinal tap (lumbar puncture) or additional testing help confirm the diagnosis?How can we tell whether what I’m experienced recently are true relapses versus symptom fluctuations?Am I a candidate for a disease-modifying therapy (DMT), and if so, which one do you recommend and why?What are the risks, benefits, and expected effectiveness of oral medications versus infusion therapies?What can be done specifically for fatigue, brain fog, pain, bladder issues, vision symptoms, and mobility problems?Given my family history, TBI history, and concern about possible CADASIL, are there additional tests you recommend?Common MS Treatments to Ask AboutDisease-modifying therapies (to reduce future relapses and new lesions) often include:Oral medicationsTecfideraVumerityAubagioMavencladInfusion therapiesOcrevusBriumviTysabriKesimpta (monthly self-injection rather than infusion)Many insurance plans cover these, and manufacturers often have copay assistance programs. Your neurologist’s office typically has staff who help obtain prior authorizations and financial assistance.One thing I’d specifically tell the neuroimmunologistBring up:Your history of MS diagnosis 10+ years agoRecent worsening symptomsHistory of TBI and cerebral contusionCognitive changes and memory issuesVision symptomsFamily history of stroke/CADASIL concernsAny heat intolerance and bladder symptomsThose details may help them determine whether there is one diagnosis explaining everything or whether multiple conditions are contributing to your symptoms.I’ll hoping tomorrow’s appointment gives me some clear answers and a concrete treatment plan. A neuroimmunologist is exactly the kind of specialist who can help sort through complicated situations like MS and my other neurological conditions.

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Hello! I am being referred for a cognitive assessment. Just wondering if anyone has had that done. Also, what happens if you fail? I'm not really sure what to expect. Thanks

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I am trying to understand how people with PPMS get treated with something other Ocrevus.I would also like to know how it's covered, insurance,out of pocket etc. Please comment so I have answers. Thank you

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I have a card for medical Marijuana. I was also smoking for a LONG time before my diagnosis. I am visiting people who don't approve and have not smoked for 2 days. I feel more unstable I my legs and overall balance. Does anyone else have an experience they are willing to share? Is my experience common?

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New Here : Hello all , I’m Miss Mary . I been diagnosed since 2011 , it’s been rough , but I’m making it. I work out everyday for an hour to keep me grounded I also implemented Nutrition meals . I start with slim fast shake with an apple and I have berries for lunch with dinner I have glazed salmon with fresh lemon to end meal

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I took my second loading dose of Kesimpta and the injection never clicked and went on very fast. Also bleeding and it hurt. Now a bruise. Not sure of some of med leaked out. I feel like the injector pen didn’t work the same as the first one. Has this happened to anyone else? Thanks.

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Did anyone else get Marburg MS also known as fulfilment subtype MS? It is a aggressive subtype of RRMS and it’s very rare. I have never met anyone else that has had it!

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I was recently diagnosed with PPMS and also have type 1 diabetes. Just wondering how MS affects my diabetes?

Point Pleasant, United States

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