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@jcflap 

Last reply

jcflap

Diagnosed July 2012, now considering DMD treatment, HELP!!

I got diagnosed last year with rrms, I have had 2 relapses (as far as I know!), these were last July which prompted MRI and diagnosis, the other was 6 years ago which the doctors etc failed to diagnose. Since diagnosis my body feels different, I have since found out there is a difference between flare ups and relapses, so I think I have had a few flare ups. I am due another MRI to see if any more lesions (?) have appeared, the ms nurse seems to think it would be a good idea to start DMD and the neurologist is on the fence. I am sorry if this is going over old things you all probably know about but I am finding it all very confusing what to do. A positive state of mind is what I am trying to keep, but inside, the future feels quite scary. Any help or advice would be very welcome!
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@MrsHawk
@MrsHawk
 

Hi There! I too was diagnosed July 2012...and i went on copaxone right away. I am now off of it as iam expecting my first baby- but my plan is to go right back on a therapy after the baby is born. It is a very personal decision and I wish you well which ever way you go but i am of the mindset that you have to do everything you can and for me that includes medication. Best of luck with this decision! xo

@rg75
@rg75
 

hello cjflap sorry to hear about the doctors failing you for that lenght of time.;( there will be some1 on here that can help you and give you some advice that has experianced something similar.can i ask what DMD means? i was diagnosed in 2008 after having a second mri, i was diagnosed with rrms to but my story is i havnt relapsed since 2008, i was advised to take medication straight away. i was told it is an aggresive form so those words were enough for me to start injecting my meds. i stopped injecting last year as all the side affects of the medication started to come back which was making me feel very tired (flu like symtoms). i still havnt had a relapse and its been a year wth no meds??????? but thats MS nobody knows whats next or when!!! its scary for us all your not alone there. rach x