@tkta2017 

Last reply

tkta2017

How were you told your diagnosis

Hi, I've just joined this site as I have been reading up on a lot of your comments and found it very useful and friendly. I have a few questions and I'm hoping you could help, just generally feeling fed up of all the waiting and no answers. So was wondering what you guys might think. MS has never entered my head until recently, my symptoms are- arm weakness only right side which comes and goes but becoming more often than not recently. Been happening for about a year now. Leg weakness again right side. Nerve pain which is very painful & comes and goes mainly right side calf, back of leg, foot and in my arm but have started feeling it on my left arm and foot recently as well. Constant Back & hip pain, stabbing headache right side that come very quick and go quickly but painful been having these about a year too. I had one occasion where my right eye went totally black but only for a few mins. Very Tired after doing things cleaning/walking/shopping etc to the point of having to go to sleep.. random finger/toes moving on there own and muscle twitches. I've been told I have nerve impingement on my lower spine which I thought was what was causing my leg problems but the arm and head/tiredness doesn't seem to fit. Been prescribed pregablin which is helping a little but pain still there. Anyway was given a full check up of ct scan bloods etc from a Referal to TIA clinic from doctor and all came back clear, the consultant wanted to do me a MRI brain/cervical spine just to rule this out. I had this done 10 days ago ive rang today and the results are back but the secretary couldn't tell me anything and that the consultant usually writes to you and should hear over the next 10/14 days. My question is would you say it sounds as though it's all clear with it her writingto me? Would they ring if MS did show? Thanks for reading and sorry for the long post..
@Stumbler

Hi @tkta2017 and welcome. It is frustrating when you body has problems and you're searching for answers that aren't forthcoming. MS is just one possibility, although MS is notoriously difficult to diagnose. The MRI should give your Neuro some more pointers regarding what's going on. However, MRIs are not always conclusive. And the criteria for diagnosing MS are quite specific, https://www.mstrust.org.uk/a-z/mcdonald-criteria . Your Neuro will contact you regarding the next steps, whether it's a further consultation or further testing, It would be unlikely to receive a diagnosis by post.

@tkta2017

Thanks for getting back to me @stumbler. I suppose I just need to wait for the letter and see what is to come next. Your so right, It's so frustrating wondering and not knowing what it is going on with my body and feeling like I'm just moaning all the time, I'm sick of hearing myself lol. Thanks for the info too very helpful 👍🏻