MS and work
Hi,
Firstly, thank you for reading my post.
I was diagnosed almost 5 years ago with RRMS. Due to fatigue I reduced my work week to 4days in 2018. Initially the reduced work week really helped with the fatigue issue but this year I feel back to square one.
Due to MS I am now heat sensitive and found this summer (compared to last) difficult particularly in terms of brain fog and anxiety. I keep messing up at work and feel incompetent. 😭
My question is does anyone else find they make adaptations to their lives to cope with the MS only to find after a while the adaptations are not as effective as before?
Advice is very welcome.
Hi Therese, I have been DX 5 years and worked with my employer for 22 years. Since I was diagnosed I have changed roles 4 times which I don’t like. I also have heat sensitivity, fatigue and brain fog which does not help when managing my staff. I feel that I am slower to process new information but refuse to reduce my hours as this would have a massive effect on my pension when I need it. My work also has a Disability and Carers Association and I was fortunate to be elected to its Executive Committee helping other staff with disability issues and representing them as required. Stay safe
@therese i read your post last night and it's been on my mind that i should've replied. I can totally relate to what your saying. Dx 20yrs and have gradually had to reduce my hours. I have no advice for you really, which is why i didn't reply, but sometimes it's nice to know that there are people out there going through the same thing. I am 47 years old, have zero prospects of climbing any career ladders. In fact i'm clinging on to the bottom rung :). I simply can't see myself working to retirement age, and worry about the financial implications of that. But it is what it is, and i do my best to just keep going, one step at a time. Xx