Sh*t scared
Don’t know if anyone remembers me but I’m currently diagnosed CIS. However, following a telephone conversation with my neurologist in December when she took me off Rebif due to low wbc, I’m fairly sure that I’ll be diagnosed with MS soon as I fit the criteria of the updated McDonald criteria 2017.
Having been off Rebif since December, I’m due bloods on Monday and have an appointment with the neurologist and MS nurse next Friday. I don’t know why I’m that worried as I’ve not changed but the criteria has. However, I’m nervous about my appointment. She said we will talk about alternative treatments. My symptoms are altered sensation in my arms/feet mainly at night which haven’t really remitted. Can’t help worrying that I’m PPMS so not eligible for treatment.
Sorry but it helps to post rather than keep burdening my husb
@smurf69 , it's understandable to be apprehensive. But, you'll still be exactly the same person after the appointment, as you were before it! But, it's always a good strategy to get your fears written down, as you have done. It sort of exorcises you. :wink:
@stumbler I know you’re right. I keep telling myself that it’s not me that’s changed just the criteria. My last MRI was unchanged and I’m generally the same. It’s just having it confirmed. I don’t want her to say the words if that makes sense. Thanks for listening though it does help 😊