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How I Live With MS and An Uncertain Future | Me, MySelf & I

“I know that having mobility issue down the road is likely. I have a super-long bucket list of things I want to do. So, if anything it’s honestly lit a fire under me.” 💚 This week's episode is with the amazing @HotMesswGrace who shares her journey of being diagnosed and how she lives each day at a time with the uncertainty of how her MS might progress. Do you worry about what might happen because of your MS? How do you do your best to not dwell on that stuff? Share your story in the comments below 👇 https://youtu.be/eBu0nak9oFA
@MarionHankins

Marion of Essex........I think I've adapted as the symptoms have arrived vert slowly! It started with optical neuritis when I was 22.......that cleared up, and had no problems until I was over 40. Limping became using a walker, and now at 75 I need the walker and a wheelchair! Life can be frustrating, but, not a lot I can do about it! Pains are a real 'pain in the neck'.....but they come and go.

@itasara

Best of luck and much hope on your journey. My daughter was diagnosed three years before I. I had no reason to believe I would also be diagnosed with MS. It turns out that I probably had it a long time before diagnosis at age 57 but had absolutely no symptoms until that one day, when I woke up with numbness which I knew was transverse myelitis. I knew what it was because it was my daughter‘s first major symptom. Neither of us have had any disease progression. My daughter came off her medication after 12 years When she was in her early 30s, and I came off MS medication (copaxone) also after 12 years when I turned 70. We both are still doing well. It’s always in the back of my mind that maybe I could end up with Progresiive MS and have to go back on injections. As for new lesions, I have in fact never had an active Lesion at the time and since my first MRI in 2005. So I must’ve had MS long before. I am taking a lot of vitamins and supplements. I don’t know if they help or not, but because I try to keep to a lower carbohydrate lifestyle, there many foods that I have not been eating, and I thought I should take all these extra supplements. I started from a list that someone had posted on one of the online MS boards to which I belong. I’ve made changes now and then depending on some of the readings I do. I think my internist and maybe others docs I see think I’m crazy for taking so many supplements, but then who knows? Maybe that’s why I feel fine despite having MS. Anyway I’m sure you’ve heard MS is different for everyone. So be positive because you may never have anything progressive at all!